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Recent content by Ian

  1. Ian

    I'm back!

    Hi all, I don’t know if anyone here will remember me, I’ve only made the odd sporadic post over the last year or so and therefore don’t know who today’s current crop of regulars are! Anyway, I was particularly active in 2011 when I was experiencing a severe flare, had exhausted all meds (I was...
  2. Ian

    6MP and weight

    I've been taking 6MP for about 2 1/2 years, started at 75mg and raised to 100mg a year and a bit ago. I was normally around 147-154 pounds, but over the past few months (mainly due to feeling well) I've started eating more healthily and being more active (the latter only more recently though, I...
  3. Ian

    Swolen Lymph Nodes?

    My neck is stiff and sore today, and I think I recall straining it yesterday when I turned my head quicky (it pulled and made me go 'ow' lol) so I thought nothing of it. But it's been bothering me and it's warm to the touch (I've checked and I don't have a temperature). Earlier this week I had a...
    • Ian
    • Thread
    • Replies: 5
    • Forum: Humira
  4. Ian

    Pred - How does long term damage occur?

    I'm curious about how long term damage occurs with this drug. I've personally been on it a fair number of times over the past few years (always with a strong calcium supplement), and have never suffered any serious side effects - just the practically unavoidable weight gain/moon face and spots...
  5. Ian

    Holiday and Humira - Solution!

    Well maybe. At my appointment on Friday, I raised the issue of going on a 2 week holiday (abroad) when doing weekly shots, as this might be something I have to contend with soon. There ARE tedious ways of travelling with it (which mean finding a VERY good form of cooling storage, contacting the...
    • Ian
    • Thread
    • Replies: 1
    • Forum: Humira
  6. Ian

    Probiotics in the UK?

    Can anyone recommend a strong probiotic supplement that's available in the UK? I've been taking one for a few months but it's only 5 billion bacteria which I understand is a small number compared to the amount people take to try and manage IBD. I wanted to get VSL-3 but I'm not sure it's...
  7. Ian

    Severe flare but no typical symptoms?

    As many of you know, I'm facing colon removal in the near future (and not handling it very well), as nothing has been able to control the inflammation this time around. A recent flexi-sig showed that parts were VERY inflamed, and sometimes I can actually feel the inflammation in my rectum - it...
  8. Ian

    I don't want this life

    My illness has forced me to abandon Uni and come home, where I've been for a month doing nothing. I will already miss my last year with my friends and won't graduate with them this year, if at all. A week ago I found out it's likely that I'll need a perminant ileostomy. I've been in turmoil...
  9. Ian

    Anything you can do to manage frequency?

    My biggest worry about potentially getting a permanent ileostomy is the number of trips to the bathroom. The inflammation in my colon won't go away so I won't stop bleeding, hence why this surgery may be on the cards. While I'm bound to start feeling worse as I wean off the barely-working Pred...
  10. Ian

    Sewing the anus shut?

    Well since my worst case scenario is a colon removal and perminant stoma (if re-trying Infliximab doesn't work and a resection isn't possible), I'm trying to find out everything I can so that I'll be as prepared as possible. From doing some googling and some reading around on here, I'm just...
  11. Ian

    My update - not great :(

    Hi all! Well after another two weeks of continuing on weekly Humira, 40mg Pred and 75mg 6MP, things haven't really improved for me (maybe VERY slightly but if so not significantly). I saw a GI today - not mine, he's on holiday - but I was armed with a page of questions I'd typed up haha, bet...
  12. Ian

    Resection of large bowel - what happens to b/ms?

    I'm currently in a flare and the worst case scenario is that I'll have the diseased section of my bowel removed. It's the last 40cm that are inflamed, so mainly the sigmoid colon. I believe this makes up about 1/4 of the colon? Has anyone had a similar surgery and if so would you mind telling...
  13. Ian

    Gut-rest while on meds?

    Is there a safe way to get a couple of days gut-rest while on medication? Obviously a short fast is out of the question; I'd never take meds on a completely empty stomach. But would a short juice fast be okay? Or would sticking to liquid foods (soup etc) for a few days have a similar effect...
  14. Ian

    Can you quickly switch from one biologic to another?

    I'm on Humira but it's not helping yet. I may well get hospitalised in a couple of weeks time if things don't improve or they get worse. The last time this happened, Remicade was my rescue drug after Hydrocortisone failed. If Hyrdo failed again, would they be able to try Remicade again? Or are...
  15. Ian

    GI appointment tomorrow, a bit nervous...

    So I started on Humira a month and a half ago to try and get me out of my current flare but so far it hasn't worked. I started a course of Pred (40mg) a week and a half ago which improved things for a few days but soon the blood returned. I'm also on 6MP so that's a biologic, steroids, and an...
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