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Recent content by ImDan

  1. ImDan

    Reducing Inflammation through Diet - Is this working?

    I've recently (2 months ago) went gluten and dairy free and noticed it has reduced my Faecal Calprotectin results. Faecal Calprotectin Results (Normal <60) May 2016 - 120 Aug 2016 - 140 --- Gluten free diet started Dec 2016 - 100 Can the results vary this much day-to-day or do you guys...
  2. ImDan

    Natural forms of treatment

    I'm interested to try some natural forms of treatment such as diet, nutrition, natural anti inflammatories etc I'm getting faceal calprotectins every 3 months so thought I'd use this to see how it affects the level of inflammation from my stool tests. But what is the best kind of advice to...
  3. ImDan

    Natural forms of treatment

    I'm interested to try some natural forms of treatment such as diet, nutrition, natural anti inflammatories etc I'm getting faceal calprotectins every 3 months so thought I'd use this to see how it affects the level of inflammation from my stool tests. But what is the best kind of advice to...
  4. ImDan

    Fecal Calprotectin Results vs Colonoscopy Results

    Two weeks ago I had a MRI Enterography and Colonoscopy. The MRI results were normal and the Colonoscopy couldn't find any sign of Crohns. The biopsy came back and said only 1 out of 6 samples taken had granulation so they couldn't diagnose Crohns. I was told to stay unmedicated and come back in...
  5. ImDan

    Colonoscopy found no Crohns - How is this possible?

    Hey guys, Today I had a Colonoscopy of my large bowel and also reaching into my small bowel. Surprisingly.. the GI said I have no signs of inflammation or Crohns at all. Waiting for the biopsy results, but how can this be possible? If you are in remission - would your Colonoscopy be this...
  6. ImDan

    Stopping Pentasa

    I went to visit a new private GI this week (apparently one of the best in the country) and he told me to instantly stop the Pentasa as it's useless for Crohns. He said not to taper down off it either. I stopped taking it last night and today I feel really weird, lightheaded, dizzy and feeling a...
  7. ImDan

    Accepting that you have Crohns

    I have a really hard time accepting I have Crohns. The only time I am happy is when I pretend I don't have it. Everytime I go to the doctor I hope they tell me it's a big mistake and I don't have it, but that's not going to happen. :/ Does it get easier?
  8. ImDan

    Medications that don't cause photosensitivity?

    Are there any (long-term) treatments out there that don't cause your skin to go photosensitive? It seems like all the main ones such as Azathrioprine and Humira seem to cause it.
  9. ImDan

    Painful Lymph Nodes

    Do any of you suffer from painful/tender lymph nodes? At the moment the only symptoms I'm receiving are night sweats and swollen lymph nodes. I have maybe 5-6 pea sized lumps on the left side of my groin, and a few on the right side. They've been swollen for 1 year+ now but only 1-2 are...
  10. ImDan

    Crohn's Treatment and Medical Insurance

    I am a UK citizen and have been offered a job and sponsorship into the US with 100% medical benefits. I was wondering does this actually cover all appointment, treatment and medication costs of Crohn's? Such as If I were to start a biologic would this be 100% covered or are there still costs...
  11. ImDan

    Getting Night Sweats with Crohns Disease

    I've been getting Night Swears most nights after tapering off my steroid medication (Budesonide). Does this mean that I'm flaring, or just a symptom that you always get with unmedicated Crohns? I started on 3 months of 9mg a day of Budesonide and didn't get any night sweats. It was only after i...
  12. ImDan

    Before I start Azathioprine - Are there any alternatives?

    Hi, I'm from the UK and been told that Azathioprine is my only option for medication here. I feel a little hesitant committing to a 3-5 year treatment course with such high maintenance and wondering if there's any other options? Even if our healthcare doesn't cover it I could look into...
  13. ImDan

    How to get off Budesonide (Uceris)?

    For you guys that have used Budesonide (Uceris). How do you wean yourself off it safely? I've been using it for 1 month now, however I've heard it's not good to be on it long-term. Currently taking 1 9mg pill per day.
  14. ImDan

    Can a small bowel resection can cause chronic inflammation?

    Hi guys, I was recommended to throw up a post here to see if anyone has any ideas on my situation. My doctor doesn't seem too interested in discussing symptoms or my history but just wants to give me a load of medication. Basically I'm trying to decipher whether I do infact have Crohns, or if...
  15. ImDan

    How to treat Crohns with no symptoms?

    Is there anyone else on the forum who has Crohn's Disease with no symptoms at all? After reading some horror stories in here I do feel quite lucky not to be faced with any of the symptoms - however It does leave me in a difficult decision on what medication to take. Obviously I'm not needing...
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