• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by irishgal

  1. irishgal

    Anti-MAP Therapy Support Group

    New study about antibiotic susceptibility of human and animal MAP strains beginning in January 2021. Very excited that essential oils will be considered too! https://humanpara.org/what-is-the-susceptibility-of-map-strains-to-antibiotic-combinations/
  2. irishgal

    New Research Project Looks at the Susceptibility of MAP Strains to Antibiotic Combinations

    MAP (Mycobacterium avium spp. paratuberculosis) has long been proposed as a cause of Crohn's. Human Para is a 501(c)(3) charity which was formed in 2017 to sponsor evidence-based research projects which either include or exclude MAP's involvement in Crohn's disease. The first two studies...
  3. irishgal

    IBD/Mycobacteria Sept 21st Conference in Berkeley Open to the Public, Pediatric presentation

    Thought some of you here may be interested in this conference, especially since there are a few pediatric presentations, including one case study on Friday afternoon, and an entire Pediatric Advances in IBD panel on Saturday morning. It's rare the general public is invited to these. Meet the...
  4. irishgal

    Berkeley IBD and Mycobacterial Conference Open to the Public - Registration closes Sept 16th!!

    Join us on Sept. 21 and 22 in Berkeley for a unique, science-based program discussing the role that mycobacteria may play in IBD and other chronic diseases like RA, T1D, lupus, MS and sarcoidosis. We've added a new speakers and presentations, especially to our two Saturday panels sessions...
  5. irishgal

    Human Para Announces 2018 Conference in Berkeley, CA in September

    Mycobacterial Implications in Crohn’s and Chronic Inflammatory Diseases September 21 & 22, 2018 Lawrence Hall of Science | Berkeley, California In September 2018, Human Paratuberculosis Foundation (HPF) and a group of dedicated researchers​ will bring their experience and expertise to...
  6. irishgal

    Study on MAP in Crohn's Recruiting Volunteers in New York City

    A second location has just been announced for the Joint MAP Testing Study! Human Paratuberculosis Foundation is looking for an additional: 15 adult Crohn's disease patients 30 adult Healthy Controls August 6th and 13th Collection Location: 580 Park Ave #1E, New York City Our study seeks to...
  7. irishgal

    New Study on MAP in Crohn's Recruiting Volunteers in Orlando

    Human Paratuberculosis Foundation is looking for: 60 adult Crohn's disease patients (with active disease) 150 adult Healthy Controls Our study seeks to confirm that Crohn’s disease patients have a significantly higher rate of Mycobacterium avium spp. paratuberculosis (MAP) infection than...
  8. irishgal

    2017 MAP Research Conference

    For those interested in MAP's role in Crohn's, there will be a large MAP Conference for researchers and doctors taking place in Philadelphia on March 24-25th. Full details are here: http://humanpara.org/2017-map-conference/ While this is just for docs, presentations and interviews will be...
  9. irishgal

    New Prof. Borody Anti-MAP research

    Prof. Thomas Borody's latest research from October 2016. He did a small study of AMAT in 8 treatment naive patients. All went into remission between 4-21 weeks. Also, the patients experienced deep mucosal healing. Full ACG poster link and his intro below...
  10. irishgal

    New FDA Warning on Fluoroquinolone Antibiotics (including Cipro and Levofloxacin)

    I know these antibiotics are occasionally used in some Crohn's treatment protocols, so I wanted to share this newly issued FDA warning. I actually experienced these side effects from levofloxicin, and was lucky that I don't think it did any permanent damage. The link below has a post from U.S...
  11. irishgal

    New Articles on Medications for Crohn's disease in an easy to read format

    If anyone is seeking information on a bunch of the Crohn's disease meds, the site I work on has easy to understand, concise write ups on a number of them. (Including Remicade, Humira, Prednisone, 6-MP, Azathioprine, and Biosimilars.) The point of this was to help patients have the info they...
  12. irishgal

    Dietzia

    Starting this thread to keep up on any of the future developments surrounding Dietzia. This summary gives background and currently published research: http://thecrohnsinfection.org/Intro-to-dietzia/ For those who haven't heard of Dietzia, it's a probiotic that was successfully used in cattle...
  13. irishgal

    Bacterial DNA linked to short-term Crohn's disease flare

    Found this new study. Looks like patients with BactDNA don't fare so well: http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg20168a.html OBJECTIVES: We aimed at evaluating bacterial DNA (bactDNA) presence in blood of Crohn’s disease (CD) patients in remission as an independent risk...
  14. irishgal

    80% remission Rate in Pediatric Anti-MAP Antibiotic Study reported in 2013

    Hi All, Some of you may know me from other treads discussing antibiotics in Crohn's, and know that I've had huge success with this after being told there was no treatment left for me. Wondering if any of you have considered this therapy for your children in light of this study...
Top