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Recent content by Irishkelly

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    Anyone here on SSI and has to be reviewed medically

    I was wondering if anyone here has received SSI due to CD? And periodically SS reviews patient to see if they are qualified to continue receiving it? Since it is incurable....what would make the government take away the SSI?
  2. I

    No Entyvio infusion. No veins!

    Yesterday was supposed to have been my adult son's first Entyvio infusion. However after 45 min of searching and sticking his arms looking for a workable vein....there were none and they had to send him home. Granted this was at a local infusion center and not a major hospital, but he has had...
  3. I

    Skin lesions all over body

    Hi. I am wondering if anyone in this group has been diagnosed with Sterile abscess Syndrome? My adult son has CD since age 15 and now is in late 30s. Last 2 years skin lesions over face and neck and groin and chest. At first dermatologist thought it was metastatic crohn but GI doctor said he...
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    How Effective is Entyvio and is it Expensive?

    Several months ago I posted about my adult son having severe skin problems and his dermatologist thought it might be metastatic crohns. She sent her report to his GI doctor. After much research, the GI doctor believes this is a case of Sterile Absess Syndrome. His doctor is changing his meds...
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    Third generation of IBD/IBS-D

    This is my first entry. One of my adult children has had IBD CD since 16. After more than 2 decades of suffering you would think there would be some better management of this disease. Recently many tests were done and only the fecal stool test showed inflammation. The first pill cam was...
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