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Recent content by Jack2013

  1. Jack2013

    Sticky Stem Cells for Crohn's Disease and other IBD

    I just failed tysabri and am running out of options, trying to save my rectum by clearing fistula. Good chance I do stem cell transplant where they take stem cells from my abdominal wall and use it to help my fistula. Is it always an infusion? I got the impression that they place them there...
  2. Jack2013

    Small Bowel Volvulous

    It's been a while since I last posted. Here is the deal. I was supposed to get my 5th tysabri infusion a couple weeks ago, but a few days before my appointment, my small intestine got twisted! For a couple days I was vomiting anything I put in my mouth, so I called my doctor and she said to go...
  3. Jack2013

    Experiences with Tysabri/Stelara/Permanent Ostomy. How to stay positive?

    Hello everyone. I am currently taking tysabri while having a temporary ileostomy. I have had 2 infusions so far and while my output is thicker and my energy is a tiny bit better, I am still having a lot of rectal pain from my fistula tract, and I think I am getting another abscess (I've had a...
  4. Jack2013

    Anyone take Tysabri for Abscesses/Fistulas?

    I have had reoccurring anorectal abscesses and have a complex fistula tract and was wondering if anyone on here had success clearing things up with Tysabri. I have had 10 or so surgeries to drain abscesses over the past 2 years, taken Cipro and Flagyl, and the Anti-TNF medications did not work...
  5. Jack2013

    Weight Lifting with Ileostomy but not gaining weight

    Hello everybody, I am currently a sophomore in college and have been lifting weights about 5x a week with an ileostomy. I had a couple questions. While I have gotten stronger, I have realized that I have had a hard time gaining any weight and muscle mass (gained some but not too significant)...
  6. Jack2013

    Tysabri Journal

    Hello everyone, new here! Here is my background... Im 20 years old (sophomore in college) and have had crohn's for 10 years. All the anti-TNF drugs stopped working (humira, cimzia, remicade, etc) and the summer before I began college I had an ileostomy for 3 months. I had the reversal before...
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