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Recent content by Jbungie

  1. J

    5yo Son Diagnosed 1/20/21

    Thank You MLP! Yes, I know that the nsaids can cause issues, tylenol was giving no relief. We have requested the script for the mono test. He's seems to be doing much better today. Did your kiddo ever test positive for mono? as always..thank you for your insight!
  2. J

    5yo Son Diagnosed 1/20/21

    Hi All! Been a bit since we've posted. L is doing good. Remicade every 6 weeks has kept us symptom free. Last month was 3 years since diagnosis, which seems insane. He turned 8 in Sept. He has had a sore throat for about 5 days. Strep and culture was negative 2 times. Aside from the sore...
  3. J

    Ali's Crohn's Journey

    So glad to hear! Thank You for the update!
  4. J

    5yo Son Diagnosed 1/20/21

    He is doing well! Symptom free and energetic. I really DO NOT want to go back to mtx, that seemed to cause appetite issues and stress. I know I am jumping the gun. We are currently at 10mg/6 weeks. Last Calpro in June was 29. I appreciate the feedback!
  5. J

    5yo Son Diagnosed 1/20/21

    Hi All, Hope everyone is doing well. We've been doing a great job with our daily shakes! Remicade level question. We seem to be in a trough level dropping cycle. Was 14.7 at 6 weeks in April, 9.8 at 6 weeks in Aug. Obviously they could move us up a week, but what has everyones experience...
  6. J

    5yo Son Diagnosed 1/20/21

    Thanks! He's in the 73 percentile for height, floats between 23-30 percentile for weight. Gonna catch his weight up to his height. It took me a bit, but discovered rotating is necessary with all food with a kid!
  7. J

    5yo Son Diagnosed 1/20/21

    Always appreciate your experienced opinions @mylittlepenguin! Thank You! We had the pink colon result, and clean biopsies as well, so just trying to hold that line, grow, and stay sane. BTW Keaton was great in The Flash, the rest was bleh.
  8. J

    5yo Son Diagnosed 1/20/21

    His sodium has floated between 134-138 for years. His Albumin dropped very low (2.9) for a round of labs about a year ago and was back to normal next round. In addition to her inflammatory makers being perfect. I trust that his doctors would relay any significant concerns, but just wanted to see...
  9. J

    5yo Son Diagnosed 1/20/21

    Ok, I am on it! He wants to be ripped and be able to dunk a basketball, so thats the spin I usually take! Caved on screen time a LONG time ago :)
  10. J

    5yo Son Diagnosed 1/20/21

    On and off shakes that we make. I agree he probably needs a supplement like that and it would make a big difference. He's picky, will like something for a month, then be like...ewww. He has interest in making his own shakes, I could supplement with some shake added into what we make. I try not...
  11. J

    5yo Son Diagnosed 1/20/21

    Hi All, We are doing well, but of course weird blips when everything looks and seems normal. Poo's completely normal, sleeping well, energetic. Calpro 29 / C Reac Pro <0.5 / HGB 12.9 My what the hell concerns.. Sodium 133 (138-145)/ Calcium 8.4 (8.8 - 10.7), Albumin 3.2 (3.7-5.6)...
  12. J

    42 years Crohns

    That is a HEAVY DUTY treatment dude! They are basically erasing your immune system, glad to hear you got thru it!
  13. J

    5yo Son Diagnosed 1/20/21

    Hi All, We are doing well. Just an experience question. We have had post nasal drip and on and off cough, sometimes it may sound dryer than other, this morning it sounded like post nasal, but this has been going on for about 5 week. Otherwise good, no fevers or anything. Just wanted to know...
  14. J

    VNS trial for UC including peds population

    It's ok, just work!
  15. J

    Current and future aspects of IBD research and treatment: The 2022 perspective

    Kiny, love your knowledge and insight! Are you a doctor of some sort? You seem to have in depth knowledge, so just curious!
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