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Recent content by Jenn

  1. Jenn

    Sticky Paediatric IBD - Articles and Research

    Article on the microbiome. https://www.nytimes.com/2018/04/06/opinion/sunday/germs-microbes-processed-foods.html
  2. Jenn

    Sticky Paediatric IBD - Articles and Research

    Stem Cell Therapy for Crohn’s Disease Approved in Europe https://labiotech.eu/tigenix-alofisel-stem-cell-therapy/amp/?__twitter_impression=true
  3. Jenn

    EGD+C, difficult insurance

    Hi, My son goes in for a checkup EGD (maybe) and colonoscopy tomorrow. I would appreciate your good thoughts for us. His Humira levels have been lower than target (6/8) the last six months or so, but no antibodies. Despite 5+ years successfully on Humira, he is in puberty, so it's a roller...
  4. Jenn

    Sticky Paediatric IBD - Articles and Research

    Early antibiotic use ( sigh :) ) http://www.sciencealert.com/antibiotics-taken-early-in-life-may-have-lasting-negative-effects-on-behaviour-study-finds
  5. Jenn

    Sticky Paediatric IBD - Articles and Research

    biosimilar http://www.chicagotribune.com/business/ct-fda-approves-humira-alternative-20160926-story.html
  6. Jenn

    Sticky Paediatric IBD - Articles and Research

    interesting article on biosimilars and cost http://www.businessinsider.com/fda-panel-recommends-remicade-biosimilar-2016-2
  7. Jenn

    Athletes

    I enjoy seeing professional athletes raise awareness of IBD and be a role model for kids. Like Diekman's Gut It Out shirts earlier this year. Just saw this article about NBA Laker Larry Nance Jr...
  8. Jenn

    Sticky Paediatric IBD - Articles and Research

    Interesting article about 4 strains of gut bacteria missing in asthma patients. Wonder if IBD will be soon? Or maybe genetics determine which strains can thrive or not...
  9. Jenn

    Combination therapy

    Checkup yesterday and doc says latest research is that combination therapy is better. My son is doing fine on Humira alone, 3 years now (with 1 year of combo 6mp) but wants to add oral methotrexate. It will improve efficacy of and the long-term viability of Humira, reducing liklihood of...
  10. Jenn

    Sticky Paediatric IBD - Articles and Research

    fight against c-diff article: http://news.sciencemag.org/biology/2014/10/bile-making-microbe-fights-germ-behind-chronic-diarrhea
  11. Jenn

    Sticky Paediatric IBD - Articles and Research

    not exactly pediatric IBD article, but still thought provoking - impact on immune system in space. Might have study implications on disease onset. http://www.nasa.gov/content/study-reveals-immune-system-is-dazed-and-confused-during-spaceflight/#.U_JyuPldWSo
  12. Jenn

    CCFA and Camp Oasis

    - sorry, this is really only for United States parents, but I am curious about what support other country organizations offer - Hi fellow parents! My son recently returned from another amazing trip to CCFA's Camp Oasis. I can't say enough good things about the life-changing effect it has on...
  13. Jenn

    Sticky Paediatric IBD - Articles and Research

    I agonized for quite awhile after dx about all the little things I could've/should've maybe done differently to prevent IBD in my son. sigh! I heard a fantastic talk a couple years back about causes. It was along the lines that genetics prime the system (make one susceptible) and inflammation...
  14. Jenn

    Sticky Paediatric IBD - Articles and Research

    Hi, just found this, thought it really interesting: Mucus useful in treating IBD http://www.sciencedaily.com/releases/2013/09/130926143147.htm and this: http://www.sciencemag.org/content/342/6157/447.abstract?utm_content=&utm_medium=Facebook&utm_campaign=Science&utm_source=shortener I thought...
  15. Jenn

    Overnight grade school field trip

    Hi all, Would like your opinions/experience on overnight school field trips for the younger ones. This one is for one night on a (docked) working sea ship. My son is 10. I'm not worried about handling/skipping medications for just one night. At first I thought, no big deal, but then started...
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