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Recent content by Jimena

  1. Jimena

    HUMIRA and MS?

    I remember reading that there were people who have Crohns and MS, propably caused by Humira? Can you tell me a little about your symptoms? I have been using Humira on/off from 2007. Almost 10 years. I have had 3 surgerys and Humira has been of prior and after surgerys of course. I have been...
  2. Jimena

    Crohns flare with ileostomy

    Have any of you had? What were the symptoms? I have had my ileostomy 3 months now. I love it. My colon (and colostomy) was removed cos i had multiple fistulas around my colostomy and ileostomy was made. I have pyoderma so soon after surgery i had to start prednison to it. I felt absolutely fine...
  3. Jimena

    New ileostomy, same old PG.

    I had a colectomy 1 month ago, they take down my colostomy and made new ileostomy on the right side. I had proplems with fistulas, wounds and PG with my colostomy. Anyway, surgery itself went well, didn't have my 3cm long spouty stoma cos my blood flow was compromised so i have quite flush...
  4. Jimena

    From colostomy to ileostomy

    I am about to have surgery on friday.i have colostomy now, and have very bad proplems with chronic wounds all over it and three fistulas around my stoma. I also have hernia mesh around my stoma. Now they are moving my stoma to right hand side and remove my colon and make ileostomy instead. I...
  5. Jimena

    Fistula next to stoma

    I had my parastomal hernia operation in june and then got complications cos i had severe skin separation and wounds 5cm deep. Then i got my Pyoderma flared again. Now i have new wounds and i saw my surgeon yesterday who confirmed that i do have fistula in the wound, and the track is all the way...
  6. Jimena

    Epidural

    I have a surgery tomorrow and i am so afraid about that damn epidural. I did have it in my first surgery (7 years ago) and it didn't hurt or anything but still i am so afraid of it! Please tell me it didn't hurt??? :)
  7. Jimena

    Parastomal hernia surgery on 13th june!

    I have another thread here where i write more about my hernia but i thought that new thread would be more about the surgery. I have hernia on my stoma site. Loop colostomy made last year. Few months back i noticed i have a hernia and it's damn painful. Making my life totally miserable cos i...
  8. Jimena

    And here comes the hernia!

    Yep. I have quite big parastomal hernia around my stoma. Very bad pains when i stand, when i just lie on my back, pain goes away. There is a bulge around my stoma and it is rock hard. My stomanurse and GI told me to go to ER right now. I ask then what they can do about it and they say that it...
  9. Jimena

    Awful headache after working out

    Ugh. I have started to go to gym, about 3-4 times a week, 1 hour at the time. Spinning, Body Combat, kettlebell ect. Proplem is, that i get awful headaches after working out! Yesterday i was in gym for 10-11am and headache starts at 7pm. Nothing helps, regular pain meds. Yesterday i was...
  10. Jimena

    Temp colostomy, how long it takes to heal?

    I mean, i have a temporary colostomy, because of severe perianal/rectum disease. I have had mys stoma fot 5 months now. I was in colonoscopy last week and my rectum looked like minced beef! Totally inflammed, even that i had prednison for months after surgery and humira every week and Imurel...
  11. Jimena

    I just pooped from my bum!

    I have colostomy. I have had it since july 2013. And i just pooped from my back behind. Weirdest thing ever! It was poop, about my finger size and there were mucus and blood too. Is it normal? Can it be something that have left in my rectum before surgery? At least know i now that i really...
  12. Jimena

    I am a mess!

    I just soooo hate this stupid Crohns. I had temp colostomy surgery in july 31th. Everything went well for about 4 weeks and then i got serious pains around my stoma and went to hospital and got diagnosed peristomal pyoderma gangrenosum, lucky me. Also they found out in surgery, that i have 50cm...
  13. Jimena

    Colonoscopy/ileoscopy trough stoma

    Have anyone had scoped trough stoma? What is it like? I have one in december, they are not going to do it in full anesthesia but give me iv drugs to numb me up. I have a loop sigmoidostomy, and they are going to scope me from both holes in my stoma, one that leads to my rectum and one that...
  14. Jimena

    In serious pain!

    I am 4 weeks post op today. Loop colostomy was made. Yesterday i noticed that skin around my stoma is very sore and it was hard and looked like blistered. Stoma nurse wanted to see it and i was at her office today. She noticed that my skin has separated from stoma and there was 1cm deep hole in...
  15. Jimena

    Surgery tomorrow, scared!

    I am soooooooo scared. I have my surgery tomorrow. They are making temp stoma for me, don't know yet is it going to be ileostomy or colostomy. If my colon is inflammed for the longer than just rectum then they are making ileostomy. I am so scared. Here it's 9.30pm and my surgery is 9.30am. I...
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