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Recent content by JJ_777

  1. JJ_777

    Feeling food moving through intestines....

    Hey everyone, just wondering if anyone else can sometimes 'feel' food passing through a certain section of their intestines? Every now and then I will feel a lump move through my lower right side... It's a very strange sensation almost like actually passing a stool, that same squeezing...
  2. JJ_777

    Partner and I considering adopting in spite of diseases

    My name is JJ, I am a 30 year old woman who has been with my female partner for almost five years (ive always been gay) and consider myself as VERY lucky... A quick rundown of my story looks something like this... I met my partner when I was 25, two weeks later I found a breast lump, a month...
  3. JJ_777

    LGBT Crohn's Patients

    Lesbian & A crohnie here! Helooooo
  4. JJ_777

    Lymph nodes enlarged in breast tissue one side.. Doctors blaming crohns...possible?

    Has anyone else noticed that when you have any kind of health problem at all, the doctors find some way of making out that it's crohns/UC related? I currently have around five very enlarged lymph nodes in my right breast. I have had one of them biopsied and it has been found to be benign (yay)...
  5. JJ_777

    Anal pain & Crawling sensation but no worms - new symptom?

    Hi everyone, I have 'mild' crohns which has been in a semi remission for the past six months. About two months ago however I started getting an uncomfortable crawling sensation in my anus along with rectal pain and occasional boughs of D. Thinking it was worms I took the worm treatment, washed...
  6. JJ_777

    Occasional 'D' safe to come off entocort for TTC?

    Hi there everyone! My partner and I want to start TTC (trying to conceive) in the next few months and I want to come off of the entocort. As it is I am in a reasonably good remissions, however I still have the occasional bought of D & stomach pains (usually if I eat anything with garlic in...
  7. JJ_777

    Renal Papillary Necrosis... Kidney issues...

    Hi everyone, I have read quite a bit about crohns & kidney stones, however I have a different kind of kidney problem! I was diagnosed with mild crohns in February of this year, however by april I started having instances of SEVERE flank pain on my right side & blood in the urine. Of course...
  8. JJ_777

    The flu.... Again....

    Hey!!! Just wondering if anyone else gets recurring flu symptoms with their crohn's? Majority of the time for me it's just a sore throat coupled with a sore tongue and difficulty swallowing... Other times a full blown flu... The worst part is that I am a singer... So getting these flu's all...
  9. JJ_777

    Entocort/Budesonide tapering...

    Hi everyone, I hope this finds you all in, or on the way to remission!!! I was put on entocort about 31/2 months ago for crohns... Tapering from 9mg to 6mg was easy and I had no side effects or evidence of flaring... However, tapering from 6mg to 3mg didn't go so well... I started getting...
  10. JJ_777

    Blood in the Urine & Pain but no kidney stone

    Hi everyone... I have just returned home from a 4 day hospital stay... Ill give you a quick run down on what landed me there.... 1. 5 Weeks ago I woke up at 6 am with stomach pain & D... Normal for me.. however around 10 mins later I had THE MOST severe pain I had ever encountered in my life...
  11. JJ_777

    ENTOCORT/BUDESONIDE advice anyone??

    Hey fellow Crohny's & UCers... My GI is looking at putting me on Entocort/Budesonide in a few weeks... I have read quite a bit about the medication and its side effects... but it is all very in-personal and technical... Basically I am interested in everyones experience with the drug as well as...
  12. JJ_777

    Tired... and in pain....

    Hi all, I have been having ongoing health problems for almost the past 10 years... Tonsils removed at 21 following 2 years of almost continuous tonsilitis... Papaloma removed from my cervix at 22 .... DX of polycystic ovarian disease & the removal of my right ovary at 23..... Discovery of...
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