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Recent content by jkd1111

  1. jkd1111

    Doctors in Mayo Clinic, Rochester, MN

    Didn't know where to post this so you got lucky. LOL Please move to a more appropriate board if there is one. Thanks so much. Just saw my gastro yesterday. LONG story short, am currently on Cimzia every 4 weeks, but she moved me to every 2 weeks. If that doesn't work she wants me to go...
  2. jkd1111

    Whole body is "shutting down", or so it feels

    I don't even know where to start. Last year had a HUGE "mystery" cyst on my upper left thigh that they said was not Crohn's related (I'm not buying it), this year had a horrible eye infection that they totally now think is related and have developed Pyraderma on top of everything else (on...
  3. jkd1111

    Starting Imuran and am not pleased...or am I?

    Well it has happened. I have fistulizing Crohn's. Long story short...was on remi for 9 years, switched to Humira just because of the convenience. It is NOT working and the fistula are getting worse (the insides are pretty good at this point though). Just developed pyraderma gangrenosa on...
  4. jkd1111

    Need to vent and you guys are the only ones who get it!

    Been a long year. Back story, I was diagnosed with Crohn's at 26 when my appendix burst. That was 34 years ago. That diagnosis sure explained a whole lot about the previous 10 or so years. Had several surgeries, became a poster child for every med they ever came out with....some worked...
  5. jkd1111

    1 hr infusion vs 2 hr

    So, is anyone doing the new 1 hour infusion now? My hospital cancer treatment/infusion center where I go is now giving us Remi patients the option to go one hour instead of the 2 hr infusions. Apparently they have found that if the patient can tolerate it there is no change in how the drug...
  6. jkd1111

    Surgery and remicade

    surgery and remicade Strong possibility I have to have surgery last part of July. On my neck this time, not CD related...well it actually probably is due to it being mainly arthritis stuff. My question is this...does the remicade affect any part of my surgery? healing process? etc? Have...
  7. jkd1111

    MRI/neck update

    I posted a couple weeks back on joint pain/general depression. Come to find out my neck, shoulders, arms and hands are probably due to herniated disks in the cervical region. I pretty much diagnosed it as I have had C5-C6 worked on twice and the symptoms are just the same. Went to the GP...
  8. jkd1111

    Joint pain and general depression

    So here I am on Remicade and now arthritis is acting up (as in I feel about 100 today)...gee how good would I feel if I wasn't on the Remi? (said tounge in cheek!) I am having a very bad, very feel sorry for myself, the only one at my pity party, day! Unfortunately, these days are coming more...
  9. jkd1111

    My appendix burst....(sorry this is long)

    That is when they found the Crohns...I was 26 years old and sitting at work. All of a suddent there was a pain like I have never felt before in my lower right side. I keeled over and scared my boss half to death. The pain kinda subsided so I went home and straight to bed. My daughter was so...
  10. jkd1111

    Ibuprophen

    Well, you would think after 30 years of living with this stuff I would know the answer to this one!!! But, I don't.....so I did a search on Ibuprophen and I all I could come up with it is bad for the gut. I was diagnosed with bursitis in both hips some months ago. Big pain, big pain...
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