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Recent content by Jmrogers4

  1. Jmrogers4

    My 10 year old Boy - prescribed Humira for life before any diet assessment

    Much the same as others have stated, we tried diets we even tried LDN but it wasn't until remicade that things truly changed and got better. If I would have started earlier could we have saved him some of the mental anguish from being delayed in growth and development. Obviously his physical...
  2. Jmrogers4

    Recently diagnosed with Crohn's

    We tried the SCD diet at one point, no gluten at another. He was such a picky eater that we just couldn't get enough calories to even see if it helped or not. He has done EEN as a treatment in place of prednisone and it worked well, he has also done supplemental nutrition with pediasure...
  3. Jmrogers4

    Recently diagnosed with Crohn's

    Thanks CIC! I wish for remission and success for all our kiddos
  4. Jmrogers4

    Recently diagnosed with Crohn's

    No side effects, he is still on Remicade. I get wanting to try other lesser meds as those that have been around can attest to I was terrified of him going on Remicade or one of the other "big" drugs. I and his GI to some extent didn't think he was "bad enough" His biggest symptom was lack of...
  5. Jmrogers4

    Much Ado About Nothing! eh!

    I've wanted to learn to play bridge for a long time. I think I definitely need to do that. 2 of my really good friends that I've known since high school we all became empty nesters at the same time so I see them a lot more now that we're not all involved with our kids' activities. We were...
  6. Jmrogers4

    Recently diagnosed with Crohn's

    As a mom that had time wasted on going up the ladder of medication and of course hindsight is always 20/20. My son stopped growing and developing for 4 years while we tried other medication. He has been on Remicade for 6 1/2 years now and has been in remission the entire time. He went through...
  7. Jmrogers4

    Much Ado About Nothing! eh!

    Thanks, he's all grown up in fact most of the time I'm an empty nester although they are both home now and I'm loving it
  8. Jmrogers4

    Tater Tot and Remicade

    Well it's been over a year since I've updated so in case anyone is interested. Jack is still on Remicade and going strong, he is home and just finished his last final on Friday for this school year. He is working part time at Mod Pizza they are still closed for dine in and he is cooking pizzas...
  9. Jmrogers4

    Remicade and going off to college

    Sorry, I just saw the tag... Yes my son is currently in college just finished junior year. My son is about 4 hours away so you're right not doable or practical for infusions but kept his doctor here, he is still in the same state though. He has infusions done by a home health nurse who came to...
  10. Jmrogers4

    Much Ado About Nothing! eh!

    I need to check in more but yes, Happy Mother's Day to all
  11. Jmrogers4

    Success Stories

    He is not, has been off it for 6 1/2 years. Had a flare and couldn't get him out of it until he started remicade and has been in remission ever since. He will be 21 in just a couple of months so pretty much deals with his Healthcare himself now although he does still ask me for advice. He...
  12. Jmrogers4

    Home Remicade infusions- pros/cons/ your experience?

    We use option care and they are contacted with a home health care in his college town. When it's time for infusion he calls option care and they overnight the meds and he calls the home health care and sets up the time for the infusion. All the billing is done through option care
  13. Jmrogers4

    Success Stories

    Of course, I post about how well he is doing taking care of his own medical stuff only to find out days later cleaning under the sink in the boys' bathroom he never did the FCP he was supposed to over the summer and the infusion center he gets infusions at near school closed over the summer so...
  14. Jmrogers4

    FCP results based on disease location

    Can we just say these kids can't be medical adults until we say so... :LOL: Jack was supposed to have FCP done over the summer, he'd lost weight etc. He never did it! From our experiences, it's been the only indication something is going on as labs just don't change for him. He was doing...
  15. Jmrogers4

    Success Stories

    I'll update - Jack continues to be in remission I think he started Remicade in January 2015 (how's that for a success story, he's been in remission for so long I can't even remember the exact date) He was 14 1/2 and is now 20 1/2, diagnosed at 10. He is away at college a junior studying...
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