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Recent content by KayleighK

  1. KayleighK

    Can MS drugs raise calprotectin levels?

    Hello all, I've not posted on here in agesss as things Crohn's wise have been doing fine. However 6 months ago I started treatment for ms. It's called gilenya. My bathroom habits have changed though and instead of going regularly it's now the opposite. I can go days without going and when I do...
  2. KayleighK

    Ms related to infliximab and crohns in the throat?

    Hello everyone, I've recently been having very weird sensations which lead me to seeing a neurologist. I'm numb from my ribs down along with pins and needles and burning. My father has Ms and he told me to get to the docs as that's how his symptoms started. I'm currently awaiting an MIR scan. It...
  3. KayleighK

    Faecal calprotectin?

    I've recently had a scope which shows 5cm of large ulcers and 5cm of inflammation in a different area from the ulcers. I just received a letter from my GI to say that sample I handed in showed a modestly elevated level of 290mcg/g. I take it this means it is not too high? What is normal? Thanks...
  4. KayleighK

    Norovirus or because I wasn't able to get infliximab?

    Hi there, Its been a loooong and wonderful time since I've had to post on here about myself but here goes with another question. I was supposed to get my infliximab Tuesday the 4th but due to a stinking cold I couldn't. The upshot is my next appointment isn't until the 20th. I've started feeling...
  5. KayleighK

    Remicade wearing off or side effects of coming off pred??

    Hello people it's been a while! Since my second infusion I've been feeling relatively good. wooop Problem is 2 weeks ago I received my 4th remicade infusion. I get them every 8 weeks. The week leading up to my 4th infusion I felt all my symptoms coming back. Running to the loo, sore joints and...
  6. KayleighK

    Have you ever laughed while getting an internal examination??

    Turns out my body could't handle coming off the pred so back on it for two week at 10mg. Not fabulous!! But the nice doc said "I'm afraid I'm going to have to look at your tail end"...which was fine, rubber gloves on, jelly etc. but after he was finished he got wipes and WIPED MY BUM!!! sooooo...
  7. KayleighK

    For the people who have drank ensure, is this normal??

    I have been on a liquid diet since Thursday drinking Ensure plus. My stools are incredibly loose ( but I figure since i'm not eating anything solid this is ok?) What is causing me concern is that they are quite black, tarry sort of. I know that could be a sign of internal bleeding but was...
  8. KayleighK

    The story so far... ugh

    So 6 weeks ago I started Infliximab was so looking forward to it. I had in my head I was going to go back to feeling well again. Well it hasn't happened. I'll give it it's due, I'm going to the toilet far less often. That's making life easier. I can now go to work and go out with my husband...
  9. KayleighK

    Am i being paranoid or is this a reaction?

    I received my first infliximab infusion this morning about 9am over two hours. I was then kept in for another hour to keep an eye on me. Everything felt great and I got home myself no bother. But since getting home I've been to the toilet 9 times so far and my stomach is in agony. (not to...
  10. KayleighK

    Sore throat and a few questions

    I am getting my first infusion on the 12th...Can not wait to get started so I can get back to work and normality!! I've been noticing my tongue being strange and ulcers breaking out. The other day I noticed a pretty big ulcer at the back of my throat so been keeping an eye on it. Last night...
  11. KayleighK

    What on earth is wrong with my pee!?

    Has anyone else noticed during a flare changes in there urine too? Mine has been the funkiest colour for ages now. Its almost green and really not pleasant. I've already been treated for a "kidney infection" that turned out not to be a kidney infection. Been in and out of hospital and not been...
  12. KayleighK

    Excited!! Infliximab bring it on!!

    After ANOTHER stay in hospital ( it's becoming a 2 monthly habit now :ywow::ywow: ) Didn't really get to the bottom off the blood in urine and kidney pain. Doctors are just putting it down to inflammation causing the pain (but what's causing the blood and protein?!) apparently it's a head...
  13. KayleighK

    Blood and Protein

    Last month I was having a lot of stabbing pains in my stomach and when it moved round to my kidney area I went to the docs. He tested my urine and said I had blood and protein in my urine and that I had a kidney infection and I was given a 10 days course of co-amoxoclav. On the 25th I was seeing...
  14. KayleighK

    In so much pain!! :(

    Reaallllly fed up now. Waiting for a CT scan/ ultrasound appointment from the hospital before I can get started on Infliximab. The stabbing pains in my stomach are sore but the pain in my hands/ arms is almost now unbearable tonight!! frown: I've been on 40mg of Pred and 150mg of Aza for over 3...
  15. KayleighK

    Infliximab vs Adalimumab...which one?!

    Went for my consultation with my IBD nurse today and the choice is entirely mine to decide. I'm leaning towards Infliximab as it has been used longer for treatment of crohn's and because the thought of injecting myself does make my stomach turn a little. But then not having to go into hospital...
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