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Recent content by KellyMom

  1. K

    Funky eye symptoms, updated!

    Hi again, Well, I met with the Opthalmologist for about 2 hours today. I found one that specializes in autoimmune disorders so she was a great source of info! She said it doesn't look like the flashing in my left eye is a Crohn's issue....yet. She said there is jellyish stuff near the retina...
  2. K

    SCD Diet....would you do it if...

    I just read the book last night. It makes total sense, but to be honest, adhering to such a strict diet that requires prepping/making so much food would be very difficult with two kids under 4 in the house that sap my energy and barely allow me time to cook as it is. My question for those of...
  3. K

    Shingles?

    Anyone have them since Crohn's diagnosis? I had burning chest pain last night, long story short went in this a.m. to get it checked since it is persisting and she thinks it is the onset of shingles. It is not heart pain, it is skin/nerve pain like a sunburn or brush burn with random bee sting...
  4. K

    Anyone else feel like bugs are crawling?

    I am desperate to figure this out. Quick backstory: Dx Crohn's this month, started with upper left abdominal pain. Did all sorts of testing, found ulcers in terminal illeum leading to Dx. Capsule study did not show anything in intestine where main upper pain is located. Still trying to...
  5. K

    Funky eye symptoms going on here, anyone else?

    Hi all, I was recently diagnosed with Crohn's. I have had eye issues as long as I can remember, but I always wrote them off to allergies, dry eyes, etc. Well now here I read that Crohn's often has eye issues accompanying it. Great. So here is what I have going on. Curious to see if anyone...
  6. K

    Soy?

    Hi all, I am new to all this and I am trying to implement diet changes STAT. I am lactose intolerant, so before my Crohn's Dx I was buying lactose free ice cream and milk. Now, I am trying to go non-dairy, not just non-lactose. I have found I am now eating a lot of soy (soy milk on cereal...
  7. K

    33 year old Mama of two with Crohn's saying hello!

    Hi everyone, Thought I would share my story in case there is anyone out there with a similar one. -Diagnosed Lactose Intolerant back in 2004 -Occasional incidents of pain that doubled me over since then, mostly from eating too much dairy or fried food -Had my son in 2008 -Had my daughter in...
  8. K

    Starting my first med today, Pentasa.

    I am scared. I hate putting any meds in my body, so taking something stronger than, say, Tums is really scaring me. I have to wait until my Husband gets back from CT today to start my first dose, because I am home alone with my two small kiddos so I don't want to take it until someone is here...
  9. K

    This seems like the opposite of good

    Hi all, I just got my Crohn's Dx last week. I am overwhelmed for a ton of reasons, but diet is definitely one of them. Everything I read makes sense in terms of not hurting the gut , but seems totally the opposite of healthy. As in, Dr. Oz would be horrified by this new diet I am supposed to...
  10. K

    I'm breaking up with my GI....

    Yup, it's not me, it's him. I need someone supportive and I did NOT get that vibe at our last meeting whatsoever. I was just diagnosed last week, and he is not answering my questions or listening to me at all. Was wondering if anyone here is from MA (near Boston) and can recommend a good...
  11. K

    Can someone guide me??

    Hi everyone, I posted for the first time a few days ago about my new Crohn's diagnosis. I got a few replies (thank you so much to those who did!) and i am just starting this journey so I have so many questions. It is completely overwhelming! I ordered a book on Amazon about the first year of...
  12. K

    Overwhelmed, just diagnosed, looking for advice

    Hi everyone, I am a 33 year old female just diagnosed with Crohn's last week. I am meeting with my GI in two days to go over the results and he told me to come armed with any questions I might have. Well....I have a ton. First of all, I am not sure after reading so many peoples' stories it is...
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