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kernelmom3's latest activity

  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    I always worry about what’s going on in there now that he’s totally off meds. His GI has told him several times that you can feel...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    Thanks for the info, I’d never heard of it until today! The nurse said the doc is trained on it and he is in the board of CCFA so I will...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    I just got a call from the doctor’s office and they scheduled an ultrasound for the beginning of June. They said he’d like to start...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    He actually was in therapy when he was younger. He did occupational therapy at school and saw a psychologist once a week outside of...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    Unfortunately he prefers to live in total denial and doesn’t want to take ANY medications or do ANY tests. He told me this last time...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    This is so interesting thank you! His doctor mentioned this but I didn’t get the name. I know my sister is very lucky that she’s had no...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    Ugh lots! My sister, father-in-law (who recently passed away from complications with Rinvoq), two of my kids, and my husband all have...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    Thanks for the info! His Crohn’s was always in his terminal ileum which was where they did the resection. Doc was very hopeful that...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    It’s EXACTLY like that! My sister was diagnosed in her 20’s and we knew my father-in-law had it so when DS was diagnosed it was like a...
  • K
    kernelmom3 replied to the thread Calprotectin elevated again.
    Thank you so much for this! I could have sworn I heard 250 somewhere too. I’m embarrassed that I have to call the GI and be the go...
  • K
    Hi all, we just got DS latest fecal calprotectin back and it went from 119 (last November) up to 200. He had his resection in 2021 and...
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