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Recent content by Ki3

  1. Ki3

    Nervous about Hernia after Ileostomy Reversal

    So I had a reversal of my looop Ileostomy on the 19th January, so its been four weeks so far. I have been doing good, feeling great and I am desperate to get on a horses back again (keen equestrian) I have slowly started practising general yard work like putting on bridles and lifting light...
  2. Ki3

    Any tips for LGBT highschool student?

    Does anyone have any LGBT+ tips for high school? Im meant to be starting in september, but since the last time I went I have developed social anxiety, got an ileostomy and come out as a Lesbian. Before I was out kids teased me saying I was gay (too true) but now im super nervous about whats...
  3. Ki3

    Rays Of Sunshine

    Hi I put this in the parents section as I think you might be interested, My nurse told me about a wish giving company called rays of sunshine, they are like make a wish, but the best part is they grant Small wishes to people with an ongoing illness that is not terminal. So allthough I am "not...
  4. Ki3

    Worried about mental health symptoms

    So I'm soon to be starting counselling for social anxiety, and I am guilty to kinda being hypacondriac and self diagnosing with everything, but this time even my dad had noticed and I feel I should be tested for something. My main problem is anger issues, and it's not that I'm always angry, or...
  5. Ki3

    Breakaway Weekends - UK

    I recently went to my first weekend away at breakaway and loved it so much I thought I would pass it on! Breakaway is a camp for kids with bowel and bladder dysfunctions. Everyone has had some surgical procedure and pees or poops differently. Its full of amazing activities, the people are all...
  6. Ki3

    I've given up on everything

    I'm so depressed right now. My crohns is ok since surgery but everything else has gone backwards. I am doing online school because of anxiety and I refuse to go to real school, everywhere I go I'm bullied, stared and laughed at. I've lost nearly all my friends and the only friends I have are in...
  7. Ki3

    I've given up on everything

    I'm so depressed right now. My crohns is ok since surgery but everything else has gone backwards. I am doing online school because of anxiety and I refuse to go to real school, everywhere I go I'm bullied, stared and laughed at. I've lost nearly all my friends and the only friends I have are in...
  8. Ki3

    Finding a girlfriend being a teen with an ostomy

    So i recently came out as A lesbian. I get so upset that Ive never had a date, ever. I have crohns and an ostomy so I guess that puts people off. my 10 year old neighbor has been in more relationships than me and I really want a girlfriend but dont know how to get one :( if anybody can help...
  9. Ki3

    Fibromyalgia? With crohns?

    I've heard people say about having fibromyalgia with crohns and I never really knew what it was, so I looked it up and it seems I have every symptom. My dad says I'm a drama queen and he hardly touched me yet it feels so painful. I blame my tiredness on anaemia and my joint/muscle pain on...
  10. Ki3

    I dont want to loose my stoma :(

    In March we have an appointment with the surgeon about discussing my reversal. It sounds weird but I feel I want to spend more time with Lily.(stoma) I still have a leak problem, it leaks pretty much daily, which isnt nice, but for some reason a part of me loves having a stoma. I knew it was...
  11. Ki3

    First day back and got an ileostomy.. schooool...

    So I'm going in to school at 12:45 and staying till it ends at 2:40 I'm so nervous. My school are known for crap communication so what if they didn't read the stoma nurses email... what if I turn up and they aren't ready and I have to go home... What if my bag leaks in the middle of a lesson, or...
  12. Ki3

    Wearing a corset with a stoma?

    Before anyone asks, yes I know I have an usual style for a 13 year old girl but I love corsets. Christmas is coming and a corset sight have amazing sales on, and I want to buy a corset so bad omg. Im worried that since you do them up so tight it might constrict my stoma and cause problems. But...
  13. Ki3

    New ileostomy, a few questions

    I had a resection on the 26th of November, last Tuesday, they were meant to remove a stricture but they found a big abscess they weren't aware of so it turned out to be a bit more complicated and I have a temporary ileostomy. It is a loop ileostomy and I have a few questions. 1: Excess gas...
  14. Ki3

    Surgery in two days-nervous!

    I'm having my surgery on Friday morning and going to the hospital tomorrow at 2pm for the prep. I'm pretty sure I will be given the same laxatives as I had for my colonoscopy-which I hated. The surgery is either to remove a 12cm stricture or to fix or repair it, and I may or may not need a...
  15. Ki3

    Do I need a special dentist?

    This may sound really weird but please read this and I hope you understand what I mean, I have a brother who has undiagnosed stomach problems and I remember a few years ago before I had crohns we went to the dentist one day. In the past he has had to have 2 or 3 hospital admissions one of which...
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