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Recent content by Kittz128

  1. K

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Stelara entyvio both at q4 dosing multiple loading doses about 8 months stelara 4 entyvio I don’t have any e.i.m so not sure. No side effects. No infections. Also just hit about 13 months of steroids and let’s see 100mg 6mp.
  2. K

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    I’ve got some experience what are your questions?
  3. K

    Higher dose Entyvio

    Just my opinion and experience I’ve used it. I think when you truly have severe crohns no simple drug would induce remission. That said it’s probably worked for people but probably not for very long. I think anyone with severe ibd will need a biologic to actually get remission I mean even...
  4. K

    Higher dose Entyvio

    Regarding simponi I can almost guarantee insurance will approve it given that crohns and uc patients have been using the same drugs for decades. No surprise Tacrolimus didn’t work. It’s practically useless for ibd in my opinion. Steroids don’t work on 1/3 of patients so not surprised with that...
  5. K

    Higher dose Entyvio

    33 days is pretty bad I think. I don’t count days but I think I was inpaitent 2 months in the hospital one stay (kinda why they gave me multiple doses, they said hospitals can do anything just to get me out)
  6. K

    Higher dose Entyvio

    I was started on the 90/4 weeeks couldn’t increase so they gave me multiple reloading doses
  7. K

    Higher dose Entyvio

    How long are you planning on waiting Entyvio out i felt better the next day I got it. I don’t understand why you would do surgery when you are getting better. Who’s idea was that I wouldn’t trust them. Your right you should use all the treatment options especially Humira I mean that’s the best...
  8. K

    Higher dose Entyvio

    Well which form of budesonide did you try and how long? Also antibiotics are not good. If remicade worked why Entyvio and not Humira cimzia or simponi since they are anti tnfs and she did good on those for a long time
  9. K

    Higher dose Entyvio

    Stelara didn’t work or hasn’t yet lol I’ve been on it for a year. remicade and Humira didn’t work. If you want to try it your daughter should use budesonide for the colon. Also did she try remicade and Humira?
  10. K

    Higher dose Entyvio

    Entyvio worked for me for 2 years but I never knew what my levels were when it was working. My gi doc just put me on 300mg/4week and said good luck. When i had symptoms my new gi got the level and said it was over 30 which is enough to work so we switched to stelara Disease was everywhere I’m told
  11. K

    Higher dose Entyvio

    that study seems very flawed. Also I had Entyvio level of 30+ when I was on it. Also I was told that when insurance keeps denying meds you can basically force them to approve by going to the hospital and having a long stay because it will cost more. I remember hearing “hospitals can do anything”...
  12. K

    Higher dose Entyvio

    That is probably more common than you would think. Take a look at it from an insurance perspective. An extra dose of Entyvio is far cheaper than a hospital stay that might lead to surgery.
  13. K

    PICC Lines?

    That’s very normal it’s impossible to get all of the air out without wasting too much fluid and a few bubbles are pretty harmless. I remember in the hospital my nurses never could get all the air out of my tpn and lipids.
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