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Recent content by lily3308

  1. L

    Wilson's Disease/low Ceruloplasmin?

    Hi all, Have any of you ever had a ceruloplasmin test? My GI wants to rule out Wilson's disease because I've had serious itching for a long time. My ceruloplasmin levels came back low which can be a sign of Wilson's disease. But cursory googling shows it can just be a sign of malnutrition or...
  2. L

    Cough with deep breath?

    Hi there, I started Humira over the summer and it does seem to be helping! However I'm a little concerned because I developed a cough in the last week or so. I had a short cold that cleared up three weeks ago, so the cough showed up about 2 weeks after the cold was clear. Basically if I take a...
  3. L

    Starting Cimzia

    Hi all, My doc wants me to start Cimzia in the next couple of weeks, and I'm scared! I've only ever taken Pentasa and 6-MP for maintenance until I had to start Entocort Dec 2015. Since then I haven't been able to taper off of the Entocort without a recurrence of symptoms. I'm worried about...
  4. L

    Moon face on Entocort?

    Hi there, I've been on Entocort for a little over a year (tried to taper a couple of times...). Hopefully will be switching to a biologic in the next month or so. I know Entocort is supposed to have fewer side effects than Prednisone because it doesn't act systemically, but is it possible that...
  5. L

    Motility issue

    Hi there! I have a question about motility/peristalsis/"lazy colon". I had a flare lasting about a year with constant terrible diarrhea. Now that I've been on entocort for a few months, the diarrhea has completely subsided, and I have my life back. BUT I have been having terrible constipation...
  6. L

    Crohn's and eating disorders

    Hi all, Does anyone else here suffer from an eating disorder? I have struggled with anorexia/bulimia/binge eating for most of my life, and it's cropped up again recently. Right now I have a lot of anxiety in my life and an accompanying flare (finally starting to clear up, I hope). With the...
  7. L

    Constipation and Spasms?

    So I've had diarrhea for most of the past couple months in a flare, but since changing my diet things have FINALLY slowed down in my gut. My problem now is that I haven't been able to go for a couple days! I feel like my butt muscles are so tense from having to clench and hold it for a couple...
  8. L

    Support for breaking my chocolate addiction?!

    I am doing a very bland elimination diet for the next few weeks to aid in treating my current flare. There are a lot of potential triggers I'm supposed to avoid, but the hardest one to deal with is chocolate. I am a serious dark chocolate fiend and have been for many years. I have tolerated it...
  9. L

    Restless leg syndrome in arms?

    Has anyone ever heard of/experienced restless leg type symptoms in the arms? Last night I kept waking up around 1 am with horribly uncomfortable tingling/throbbing in my arms. All I could do to relieve it was move my arms around and pace around my apartment; I couldn't get back to sleep for...
  10. L

    Drinking water after a meal?

    Hi all, I'm in a frustrating flare right now, and food is just going right through me. I once (a long time ago, in a book about IBS) read that drinking a lot of water with/after a meal can cause your stomach to empty more quickly and prevent it from doing its part of the digesting. What I've...
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