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Recent content by Lilyworm

  1. L

    Hair loss above the ears

    Hi all, my 18 yr old daughter has had two surgeries and has been on steroids, imuram, humira, and for the last year and a half only on Remicade. She has had hair loss before, but it has come back and mostly the hair loss was on her arms Abd legs. Now she has hair loss above her ears that is only...
  2. L

    Surgical adhesions! Need help for my daughter!

    Hi! My daughter and I both have crohns, but she, 17, had her first bowel resection in October, and her second surgery in July to deal with scarring from the first surgery. I have so many questions for you! Firstly, is there a type of surgery, or particular surgery center or surgeon who...
  3. L

    16 yr old girl needing to switch from Humira-What to take?

    Hi parents! I'm new to the forum. I have behcet's and crohn's and my daughter has crohn's. She is needing to switch from Humira (too many side effects after only 10 months) and I'm wondering what you'd recommend? Pentasa does not provide relief and budesone helps but is not a long term...
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