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Recent content by Loriebird

  1. L

    6mp complications

    I'm a little worried about my 6mp usage. In my recent blood tests, I had elevated liver levels and a follow up blood test showed toxic levels of 6mp in my blood. My doctor's office called to tell me to go off the drug. I won't see my doctor again for over a week though. I've had weird, but mild...
  2. L

    Moving to UK? What's the healthcare like?

    Hey! You will be happy to know that my surgery in December was successful. I feel better than I have in years. I'm currently not on any meds, but I can feel my condition sliding again and will be getting back on a treatment plan soon. Anyway. I'm considering moving to the UK next year. I'm...
  3. L

    Difficulty recovering from surgery.. weird bladder pain?

    I had a resection in December between semesters, and it hasn't been going well =\ The surgery was mostly to get rid of two fistulas, one connecting to my bladder, and the other to my belly button. Anyway.. I've spent over two weeks in the hospital and another two weeks with a home care nurse...
  4. L

    What do you do??

    Hi, everyone. It's been a while. Just an update - I finally got my surgery Wednesday. I won't go into the specifics, it's not that important. I'm really happy that I got the surgery. I have lots of support right now - my family really came togeether and has been helping me a lot. This is...
  5. L

    What would you do?

    I just had my first surgery consult today and I feel so alone and scared. My crohns is under control, but I have an active fistula in my belly button. My infectious disease doctor (who has been respsible for most of my care and who I trust) has wanted to (1) increase the dosages of my...
  6. L

    Sticky Crohn's Forum Candle Room

    This candle is for my brother who took his own life earlier this year. We love you and we miss you.
  7. L

    Success Stories

    Remicade was a godsend for me. It did not heal my fistula, but it keeps me out of the hospital. Since starting remicade, I have been pain-free. I remember a time when I didn't know what that felt like. I look forward to my treatments every 8 weeks and would get them every day if I could...
  8. L

    Stubborn Fistula - Hopeless?

    I've had a very stubborn fistula extending from my colon to my naval cavity for about 1.5 years. I have been on remicade for a year and 6mp for about 6 months but I feel like I've hit a wall.. my stomach keeps healing and then draining, healing and then draining.. it's ruining my life. I can't...
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