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Recent content by lukesjr

  1. L

    Probiotic: AKKERMANSIA MUCINIPHILA

    where did you get it and what brand?
  2. L

    Higher Vitamin D Levels are Associated with Improved Outcomes in IBD Patients Treated with Entyvio

    There is a book on amazon called The Miraculous Results Of Extremely High Doses. Its a good book, obviously don't take it as medical advice. But there is a case in there of a person with crohns whose doctor prescribed 50000 iu of vitamin D once per week for a month and it put the person in...
  3. L

    Fiber-deficient diet inhibits colitis through the regulation of the niche and metabolism of a gut pathobiont

    I find this fascinating because adding a lot more fiber reduced by symptoms by 90% at least. I guess this goes to that crohns may be a catch all for several diseases with different pathologies.
  4. L

    I am now in remission

    Oddly enough, my wife is Hungarian and we have several friends that live in Hungary. Maybe I can ask them to check it out for the benefit of others. Hungary is a small country, and those that live in work in Budapest a much smaller population. You would be surprised how many people know each...
  5. L

    I am now in remission

    I am surprised how defensive people get about alternate forms of therapy. There is definitely this crowd in the Crohns community that are adamant that "pharma is the only thing that helps". Personally I think we have enough stories and medical literature showing us alternate therapies have a...
  6. L

    Homeopathy and Crohn's

    for some yes, for some no. I don't think there is definitive "medical" proof that it does. For me, it has worked pretty well. And by homeopathy I assume you mean vitamins, diet, fasting, etc.
  7. L

    "Scientists discover promising new lead in Crohn’s disease"

    great so they suppress the protein and you get cancer! So its either cancer or crohns! LOL
  8. L

    Appointment anxiety

    Anxiety is real, everyone gets it some worse then others. The important thing to focus on is what you can control. People get anxious about things that already have an outcome. As an example, you are going to the GI appointment right? Not going is not an option. Whatever the outcome of the...
  9. L

    Unfermented β-fructan Fibers Fuel Inflammation in Select Inflammatory Bowel Disease Patients

    Interesting discussion. My GI recommended fiber to me. Psyllium husk has dramatically improved my condition. Benefiber seemed to make me feel worse.
  10. L

    The multifaceted virulence of adherent-invasive Escherichia coli

    I am good, have had no symptoms for a long time. Just keep hoping it stays this was for as long as possible.
  11. L

    The multifaceted virulence of adherent-invasive Escherichia coli

    I was actually going to be in that trial, but I am in DC and couldn't make all the required trips to NY.
  12. L

    Cistanche and NK cell activator (modified rice bran)

    Hey all, I have mild crohns. I have been about 95% back to my normal self on supplementation and diet for the past ten years. I routinely try different supplements based on research/trials., For the past month I have been trying a NK cell activator and Cistanche, oddly, not for crohns but for...
  13. L

    Ivermectin and Fenbendazole

    As with all advice, you should talk to your doctor! This is the internet, tons of good information and tons of bad. Yes, everything is age/dose dependent. My advice is for adults. If I was going to do this for my child, I would likely go the spice route instead. LIke, instead of a tumeric...
  14. L

    Ivermectin and Fenbendazole

    What I do mostly for crohns is. Vitamin D, tumeric, Lglutamine, alfalfa, and fiber What I did in the past is almost too much to list. I have tried so many things. The things I think helped are this. worm wood 500 mg 3 times a day for a certain period. There is a medical research document...
  15. L

    Ivermectin and Fenbendazole

    Forgot, Lglutamine most mornings in my water.
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