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Recent content by Madhu

  1. Madhu

    Rotavirus vaccine for crohnie's kid

    Hi everyone, my husband has crohn's disease and is currently stable on Remicade and methotrexate. We had a baby in December and she is due to get her Rotavirus vaccine dose 1 now. Her pediatrician and my husband's gastroenterologist were concerned since it's a live virus vaccine. They have come...
  2. Madhu

    Ways to gain weight

    Hi everyone, My hubby has crohns and he recently had a small flare. It seems to be under control now but he has lost a lot of weight. He is a thin person to begin with. He is 5'6" and now weights 110 lbs. He feels very conscious about his weight, his clothes are loose, his arms look so thin :(...
  3. Madhu

    Remicade not effective anymore?

    Hi all, I desperately need help. My husband has crohn's. He was diagnosed 3 yrs ago when we were in NJ. He had ups and downs these 3 yrs starting with a horrible flare, then going into remission, then coming out of it, then kinda had it under control. His Dr there was amazing. We had to move...
  4. Madhu

    Fistula concern

    Hi all, I have been on this forum for a while and you have been really helpful during tough times. I'm back now. My husband was in crohn's remission for a year in 2016. He had a minor flare in mar 2017 and was quickly controlled by adjusting remicade schedule from 8 weeks to 4 weeks. He is now...
  5. Madhu

    First time home infusion

    Hi guys, My husband has been on remicade for more than 3 yrs now and this is the first time he is going to have it administered at home. Any advice for me? I think the medicine will arrive tomorrow, any ideas on what to expect? Thanks!
  6. Madhu

    Sticky Crohn's Forum Candle Room

    I light a candle for Salad_Shooter. I just saw her post that she is going through a lot of problems now. I hope she gets through everything!
  7. Madhu

    Stelara for Psoriasis + Crohn's

    Found this article trending on facebook today. I guess this is good news? :) http://www.reuters.com/article/us-johnson-johnson-crohns-stelara-idUSKCN0WK1OR?feedType=RSS&feedName=healthNews
  8. Madhu

    Need to vent :(

    Well, this is not related to my husband's Crohn's, though it vaguely is. I just need to tell someone about this. We are in NJ now and he is getting his Remicade at NYU under one of the best doctors we have seen. We are so happy and comfortable at the moment especially since he is improving...
  9. Madhu

    Remicade in India - anyone?

    Hi all, We are currently in USA and my husband is on Remicade here. His employer now hints he might have to move to India :( We are worried as to what will happen to his Crohn's treatment. Is there anyone getting Remicade infusions in India? We will be at Chennai but we can probably travel to...
  10. Madhu

    Remicade level in blood

    Hi all, My husband has finished 3 loading doses of Remicade and starts the maintenance dose from Oct end. His GI wanted to check the level of Remicade in his blood. Currently he is on 10 mg/kg dosage. We are waiting for the test reports to come back. I was curious to know what the level should...
  11. Madhu

    Mucus-like discharge in rectal area - HELP

    Hi all, My husband had his 3rd Remicade loading dose 10 days back. For the past 1 week, he has been noticing mucus-like discharge which is slightly white in colour. This gives a sticky feeling in the anal area. Today when he felt sticky, he wiped it clean and found slight traces of blood mixed...
  12. Madhu

    High potassium

    My husband just got an email from the GI nurse that his bloodwork shows high potassium levels (didn't say how much). They need to re-check it and he is going in tomorrow for that. Any idea what it means? I did some research and all I see is Crohn's patients usually have low potassium levels. I'm...
  13. Madhu

    Husband newly on 6-MP

    Hi all, So my husband is currently on Remicade and his GI has now put him on 6-MP too, he said it will help in the body not developing resistance to Remicade. I read a lot about 6-MP and quite frankly, I am pretty scared. I read its a chemo drug and could cause adverse effects? GI said he will...
  14. Madhu

    Sticky You Are Not A Burden!!!

    Wow, such an awesome post. I just read it out loud to my husband who is suffering from Crohn's and it immediately made him smile. Thank you so so much for these words :)
  15. Madhu

    General queries on Insurance in USA

    Hi All, It's been a year since my husband and I moved from India to USA. Though we immediately obtained medical insurance as it is a pre-requisite, we never really understood how it works here. It's a completely different process in India. Only after my husband was diagnosed with Crohn's...
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