• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by MapleLeafGirl

  1. MapleLeafGirl

    Oh Great - It's Hamburger and Hotdog Season Again

    I don't know about the rest of you, but one of the things I hate most about spring/summer is that every party I get invited to, guess what the only thing on the menu is - hamburgers and hotdogs. I can't eat either. My husband comes from a family of six and everyone is married has kids which...
  2. MapleLeafGirl

    An Update - Surgery Question

    Hi all - It's been a while and I see there are many new faces on here. I am still waiting for my surgery date. I finished my last round of pred January 13th and my GI now has me on Budesonide (6 mg) as well as Imuran to tide me over. It was working until a couple of weeks ago and I am now...
  3. MapleLeafGirl

    Budesonide and Prednisone

    So my doctor is starting me on Budesonide (Entocort) so that as I taper off the prednisone I will have something else to hopefully keep the inflammation at bay until my surgery. I assume I can take them both at the same time as he didn't say anything about not doing that, nor did the...
  4. MapleLeafGirl

    For you Canadian Crohnies on Prednisone!

    Scary stuff. At least it hasn't made me do anything like this guy! http://www.thestar.com/news/canada/article/890177--prednisone-connection-in-russell-williams-crimes?bn=1
  5. MapleLeafGirl

    And it begins again...

    So, I have been feeling pretty awesome, tapering down my prednisone was going great. I thought I was in the clear. I just finished my taper and I can feel all the old symptoms coming back - the pain, the bloating, the fatigue, the frequency, etc. I was telling myself it was something I ate on...
  6. MapleLeafGirl

    Does Prednisone Always Affect You the Same?

    I am just curious because I am on my third round of prednisone and this time it feels different than the first two go arounds. I gained major weight the first two times around and this time I haven't gained any. I am slightly puffy, but nothing compared to the last two times. The insomnia...
  7. MapleLeafGirl

    Surgery or Remicade

    Yesterday I was given the choice of surgery or remicade. I have chosen to go the surgery route and have been put back on prednisone while I wait. Do you think I made the right decision? A bit of background: I have narrowing in my ileum and keep getting partial blockages. I also have two...
  8. MapleLeafGirl

    Feeling Better, but Inflammation Markers Still High

    So, I just got my latest blood work back and my CRP and ESR are both still high. However, I have been feeling better, i.e. less bowel movements, more formed, no pain, but still lots of mucus. Anyone else ever had that? I have an appointment on the 24th to talk about options. Last time he...
  9. MapleLeafGirl

    Frequency

    So what started out as just a few bad days, is now turning into everyday. I have never had to deal with frequency before. The most I had to deal with was about five times a day and always in the morning. Now I am going all day no matter what I eat (mostly diarrhea). But I still have an...
  10. MapleLeafGirl

    Is it a flare?

    So I went off the prednisone March 16th and am now just on 100 mg of Imuran a day. I am still feeling pretty good and much, much better than I was, which is what is confusing me. I have no pain, fatigue, etc. which I usually get when I am in a flare. However, I will have relatively normal...
  11. MapleLeafGirl

    My Story

    I have already had a few posts, but thought I would take the time to share my story. Since my teens, I have always had what I thought was a "sensitive stomach". I can trace it back to a severe bout of food poisoning (or was it - no one else got sick) from chinese food. Ever since then my...
  12. MapleLeafGirl

    Weird poops - for me anyway!

    For the past five days my poops have been nothing more than what I am calling "little mucus balls". Since coming off prednisone and being on imuran, I have been having fairly normal poops, about once or twice in the morning. Now I am going all day, but it is just little balls that have a lot...
  13. MapleLeafGirl

    New Member - Question About Fistulas

    Hi all! I just wanted to start by saying that I love this forum and am so happy to have found it! This is my first post. At a recent visit to my GI he told me my recent CT scan showed two small fistulas - one between sections of my small intestine and one between sections of my large...
Top