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Recent content by Marx

  1. M

    Tolerating food

    Hey guys, just wanted to see if there were foods that you loved but could not even think of touching pre op but post op eating trouble free? For me its always been deep fried food. Pre op If I touched deep fried food I'd get a blockage for sure! I'm desperate for some McDonald's or KFC having...
  2. M

    Blockage after op?

    My question is, if I've had an operation to remove the disease, why am I still getting blocked?
  3. M

    Passing wind stoma

    Ok so I've had a stoma bag for nearly two weeks now and weirdly I have just passed wind through my backside for the first time. I thought it was meant to come out of the bag? Is this normal? Help!?
  4. M

    My surgery

    Hi Guys, It's about 12 hours before I go to the hospital for my ileocecectomy. My feelings are very mixed right now, excited, nervous, anxious, eager. The fact that I'm getting on/off pain is motivating me even more. I'll try and keep a log of how it goes on here just so I can share my...
  5. M

    Food prior to surgery.

    Does it make a difference what you eat in the week leading up to your operation?
  6. M

    Finally surgery!

    Hey everyone, So I go a call this morning to tell me my surgery will be on Wednesday!!!!! Yes THIS Wednesday. I'm so excited right now but in a few hours I'll probably be shitting myself! I can't even think straight right now, please any advice/tips pre op and post op would be HUGLEY...
  7. M

    How long until pred out of system?

    Just a quick question, anyone know how how long it takes your body to clean its self from steroids, specifically predniselone?
  8. M

    How likely is a leak?

    Hey guys, I met with my surgeon and he explained that because I'm on predniselone, so underweight and malnourished, I may need a temporary bag in fear of a joint failure and to let the gut rest for a while. He said he'd make the call on the day but ultimately it's my decision. Little...
  9. M

    How long after pre-op tests is surgery?

    Hi guy, So I've finally been booked in for a pre op assessment and MRI but still don't have a date for the actual op. From experience, once you have the pre op tests, how long after is the surgery performed? I'm thinking they wouldn't do the tests if the operation still a long time away? Or...
  10. M

    Waiting times?

    can anyone from the UK tell me how long did they have to wait for surgery on the NHS, from point of seeing the surgeon for consultation?
  11. M

    Weight?

    Hi guys, I'm REALLY thin. I weigh around 50kg and I'm having surgery this summer. Was just wondering if its easier to put on weight after surgery and how much people have put on?
  12. M

    Advice :(

    I've been on remix axe infliximab since December now and it only works when I take predniselone with it. Every time I taper off the pred, my pain, nausea and gas come back! And the last 2-3 weeks before my next dose are the worst time for me. Ay advice guys? I'm due to see my gi in a couple of...
  13. M

    Surgery? I think so!

    Hi guys, I've been suffering from a flare up since October 12. I've exhausted steroids and infliximab. I think I'm mentally ready for surgery. Having met my surgeon, he advised I would need about 40 or so cm taken out (which shocked me). He also said they might need to put a temporary stoma in...
  14. M

    Surgery over remicade/infliximab?

    Trying to push for surgery instead of infliximab which my doc is pushing for. Just really confused!!! I need to make a decision by tomorrow morning to go ahead with infliximab or to cancel and push for surgery. Why does everyone say, put off surgery as long as you can? Clearly everyone...
  15. M

    Infliximab vs surgery?

    So steroids aren't working for me anymore and the next step which I will discuss with my GI doc tomorrow will I presume be infliximab or surgery as we've flirted with the idea of those when I was last admitted into hospital. I'm leaning towards having an operation as I'd rather get it over and...
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