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Maya142's latest activity

  • Maya142
    Maya142 replied to the thread Case Closed.
    Glad you finally found an answer! I'm sorry to hear it is a chronic, difficult to treat illness, but I'm sure the relief of just knowing...
  • Maya142
    Maya142 reacted to MissLeopard83's post in the thread Case Closed with Like Like.
    Hi Everyone, I wanted to post an update and let everyone who I used to talk to know how I'm doing. I haven't posted here in quite some...
  • Maya142
    Maya142 replied to the thread Heard from Doc today.
    Ah, I love "adult kids" (I really wish we still had the emoji that was banging its head against a brick wall repeatedly because that is...
  • Maya142
    Maya142 replied to the thread Heard from Doc today.
    Oh geez! That's not good. Can you find them online? Could you find flushable wipes? Or even baby wipes in each bathroom (and a trash can...
  • Maya142
    Maya142 replied to the thread Heard from Doc today.
    M has actually been on cholestyramine (Questran) before - for a clean-out of an arthritis drug that was causing severe side effects. It...
  • Maya142
    Maya142 replied to the thread Heard from Doc today.
    Bile acid diarrhea...what is that? I ask for your O, but also for my daughter who had an eventful week of non-stop diarrhea and severe...
  • Maya142
    Maya142 replied to the thread Heard from Doc today.
    I would also guess it's the Entocort. She's been on steroids so much that I would honestly consider seeing an endocrinologist and...
  • Maya142
    Maya142 replied to the thread Back to the drawing board.
    I would definitely do some small bowel testing, given that her disease was originally diagnosed by pillcam. You can't really know that...
  • Maya142
    Maya142 replied to the thread Silent Crohns.
    Poor kiddo. I hope very much they will put her on biologics after the surgery!! Are they expecting her to need an ostomy? How is she...
  • Maya142
    Oh Maya, that is such a tough decision. :( Just one consideration and, in all honesty, I don't even know if it would make a big...
  • Maya142
    Guven the extent of her disease She needs the new meds . She does not have an underlying respiratory disease .- that is the turning...
  • Maya142
    Maya142 reacted to Scipio's post in the thread Perspective - Covid-19 and our ibd kids with Like Like.
    The risk of COVID-19 exposure from flying within the US is still pretty low (unless you are flying to a real hotspot like Seattle). And...
  • Maya142
    Maya142 reacted to Jo-mom's post in the thread Perspective - Covid-19 and our ibd kids with Like Like.
    I hope it works out! Your girl is quite amazing Maya. Warm thoughts that things get better for her. Hugs.
  • Maya142
    It is very nice of all of you to care so much about my girl :love:! Luckily, we have found a way for her to get the drug without flying...
  • Maya142
    Wanted to add - my daughter's specialists said the same thing, except they did not gave a % for her risk of complications, just said it...
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