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Recent content by Minionaire

  1. Minionaire

    Men's swimwear for competition

    Hi Folks, I've had my ileostomy for nearly 2 years now and I'm so keen to get back to the sport I loved - swimming. I have found a great solution for open-water swimming which involves a stoma guard belt underneath my wetsuit. This works really well because everything is snuggly held by the...
  2. Minionaire

    Poor healing - could it be due to stoma?

    Hi, I was just wondering if anyone else with a stoma has had any issues with healing after injury? I have several things which don't seem to be healing. I'm talking about sprains and strains which just never get better.
  3. Minionaire

    Being an ostomate is...

    Am feeling in a bit of a silly mood and thought I might start a thread looking at the funnier side of being an ostomate. Thought we could come up with one-liners to laugh about the quirks of life with a stoma. To get the ball rolling: Being an ostomate is... ...cleaning the poop from between...
  4. Minionaire

    Ostomysecrets - NO LONGER SHIPPING OVERSEAS!

    I am a UK resident and I have just spoken to a representative at Ostomysecrets.com - they told me they are no longer shipping to non US addresses. I have to say I'm actually pretty annoyed about this... I am interested to see how many people this will affect - personally I feel their men's...
  5. Minionaire

    A bit of a shock...

    As previously posted I had proctocolectpmy and ileostomy surgery 5weeks ago. So I had my follow up appointment with my surgeon yesterday and he had some interesting news...the results of the pathology on my colon post surgery showed (with absolute certainty) that I actually suffered from...
  6. Minionaire

    Saunas and steam rooms

    Hi folks, just wondering if it is ok to use saunas or steam rooms whilst wearing an ostomy bag?
  7. Minionaire

    Extending bag wear time...

    Hi all, I am after some advice. I really want to use a 2 piece system to cut down on how often I change the seal around my new stoma. I am using a Hollister 55mm system at the moment but am only getting 1 day of wear before the seal goes, meaning I'm currently changing both bag and wafer daily...
  8. Minionaire

    Surgery tomorrow...

    Well that's me in hospital now, my proctocolectomy and ileostomy scheduled for 0830 GMT. Thanks to all of you guys that have supported me so far. For a laugh I might try to post something tomorrow when I have my morphine drip! Dave.
  9. Minionaire

    Stoma placement

    I'm going to be having a total proctocolectomy and end ileostomy procedure on 20th Feb and between now and then I need to meet with the stoma nurse. One of the main objectives is to decide on placement of the stoma. I tried wearing a false stoma for a day or two and it was in a good position...
  10. Minionaire

    LDN Question

    Hi Folks, I have just been made aware of LDN on this forum and would be keen to investigate if it could work for me. I will be meeting with my GI tomorrow but I wonder if anyone could answer this question for me... Can I take Prednisolone alongside LDN? Many thanks!
  11. Minionaire

    Ileostomy looming...

    Hi all, I've recently been having to get to grips with the prospect of undergoing an ileostomy due to the fact that there does not seem to be anything that can send this damn disease into remission. The only thing that works to reduce symptoms is pred. I have tried all the conventional drugs...
  12. Minionaire

    Data, Data & More Data

    I just wanted to quickly share my thoughts on how important I feel it is to record pertinent data. I was diagnosed with crohn's 5 years ago and it recently dawned on me that I can't actually remember much of my medical history for the past 5 years. Of course I can generally comment on how I've...
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