• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by muppet

  1. muppet

    Panic attacks - what are they like?

    I'm starting to wonder if my "seizures" aren't just panic attacks. I've posted a few threads about what's going on so if you look on my profile you'll find paragraphs if you're curious, but the upshot is that I've been having these massive head rushes that end in a cold sweat and sometimes...
  2. muppet

    Still having "seizures", not sure what's going on, pretty terrified

    Wikipedia actually lists seizures as an EIM, but I didn't read the citations. The article claims it's present in about 15% of Crohn's patients, so you'd think it would be more commonly reported here if that were really the case? So, once again I was having "partial seizures" yesterday from...
  3. muppet

    Anybody else experience seizures with CD?

    I've been doing some reading recently, and evidently there's a fairly high incidence of epileptic seizures of various types as a documented extra-intestinal effect of Crohn's. Does medication of any type exacerbate it? Are you on anti-convulsants? Been told you should be? There seems to be...
  4. muppet

    Getting docked 3 days' pay right before Christmas

    I used up most of my paid time off this year in January when my daughter Sarah was inpatient in Boston with her Crohn's, so, I'm out. Too bad for me. Hey, I get it, that's how it works. Except, they're already working on trying to reduce their liability in terms of paid time off the team has...
  5. muppet

    So I'm pretty sure a Lialda overdose stopped my heart on Monday

    I think it was via seizure, which I've had before when overdosed on other meds. My GI has repeatedly told me over two decades that Lialda is basically a topical analgesic and is barely absorbed by the body. Well, that may be true but I found and later he also found some rare documented cases of...
  6. muppet

    OK, so, getting to the end of our rope, perspective needed.

    I love giving my two cents around here and offering all sorts of advice (I'm sure you've noticed ;)) but I hate, hate, HATE asking for it. It implies I don't know everything... Sarah is 14 now, and for the past 3 years, following her failed Remicade trial (3 infusions and then a severe serum...
  7. muppet

    Pregnancy, BCP, and Crohn's

    I've heard more than once that some women report that their Crohn's symptoms abate with pregnancy, with the consensus seeming to be that it has something to do with the hormone changes associated with pregnancy. Since BCP, at least in some limited way, "simulate" pregnancy in order to keep the...
  8. muppet

    OT - not even Crohn's related (again)

    When I was a kid, around 8-10, I was on a drug called Quibron TSR for my chronic asthma. Quibron is finicky stuff, containing theophyllin, which nowadays they measure in your system using a blood test. I have no idea if that was being done back in the mid-to-late eighties or not. One...
  9. muppet

    Seems like it's mostly moms in here?

    I'm not trying to start a gender war or anything.. but it seems as though this section is dominated by moms of kids with Crohn's. I mean, I know we have the odd dad out here (I'm an odd dad for sure! :D), but I wonder why it is that we don't have more guys doing the research and pounding the...
  10. muppet

    Updated the blog after almost a year dormant

    I'm not sure who of the regulars on here from when I was actually showing up are still around, but lots of my readers were from here, so here's the link: http://www.sarah-story.com/2012/11/14/what-a-long-strange-year-its-been/ Hope that's OK these days. Hello! Maybe I'll actually be around...
  11. muppet

    Having surprisingly good results from Aloe beverage

    I'm still taking all of my meds (ASA, occasional pred) but I was at the Asian market the other day and saw a drink simply labeled "aloe" in a stylized font in a green 1.5L bottle. It's got 8% aloe puree and aloe gel powder, and a healthy helping of sugar to make things more palatable I guess. It...
  12. muppet

    Anybody else ever been told their peri-anal fistula is inoperable?

    I had an abcess about 8 years ago and it was so bad I went to the ER. Scared and in pain, I had a lapse of judgment and assertiveness and allowed a general surgeon to schedule me for an emergency lancing and packing. Well, that didn't take, and I saw him in his office six more times to have it...
  13. muppet

    Should I go on Remicade, or just stop being lackadaisical about my regimen?

    Lialda works for me. It works well. If I stay on it, I tend to have a flare MAYBE every 2-3 years, which can be controlled with prednisone. Lately, that's not what's been happening. I've been dealing with a suicidal teen daughter, a developmentally delayed 2 year old, passive aggressive...
  14. muppet

    Positive vent!! Not sure where else to put it!!

    Izzy started talking!! Suddenly, spontaneously, just started talking in full sentences. Also smiling, laughing, making full eye contact, and generally being a totally normal toddler with essentially no overt autistic traits! I doubt whether most people on here will still remember my venting...
  15. muppet

    Dear Crohn's Forum, it's been 2 months since my last post....

    After 7 or so years of avoiding it, I'm seriously considering Remicade. I have to admit that my on-again, off-again relationship with Lialda and Prednisone just isn't cutting it (and will never heal my fistula). I got a taste of no fistula last year when it became inactive for 3 months, and I...
Top