• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Nancye50

  1. N

    Possible blockage with scopes tomorrow.

    I am scheduled to have upper and lower scopes done tomorrow. But I think last night and today I’m having a little bit of a blockage. I have had a couple small, loose stools so I’m not worried about complete blockage. My question is, do I stand a chance of really racking things once I start doing...
  2. N

    Switching from 80mg Humira to Remicade?

    I had a scope yesterday and despite having felt good for months, my guts are no better; probably worse. Has anyone switched from Humira to Remicade? How long are your infusion appointments? What are the different risk and side effect factors?
  3. N

    Colonoscopy today. Appendix protruding into intestine?

    I've been feeling really great. I'm on 80mg Humira every two weeks and would really like to decrease. Doesn't look like that's going to happen. There's still a ton of inflammation and now my appendix is protruding in to my intestine. There's been a bowel to appendix fistula but it's developed...
  4. N

    Resection for terminal ileum?

    I've been feeling okay but still get LRQ pain at times. I have an appointment in May and scope end of April. If my GI starts talking surgery, what can I expect from resection if my main involvement is terminal ileum? She's said in the past that we need to get into total remission or consider...
  5. N

    Supplementing Magnesium has been fantastic!

    I've been doing a lot of reading on adrenal fatigue as I tend to get sick with chills and aches which has even led to LRQ pain (which I've been free of) after working out. I've gained too much weight and feel like I need more exercise! I started taking Natural Calm (sometimes the...
  6. N

    Is there a legit MTHFR study going on?

    I'm looking in to genetic testing and would prefer my results contribute to research if possible. Is there a study out there someone could refer me to?
  7. N

    A year after my Crohn's dx, now my daughter

    Is having issues. Her blood panel came back good but the Celiac screen hasn't come back. Is it safe to assume that Celiac isn't likely with normal inflammatory markers? I'm taking her back to the dr today. I'm not sure what to hope for in a next step? She having intermittent stomach pain...
  8. N

    New Paleo app

    @thepaleomom (Author Sarah Ballantyne) posted on Instagram this morning about a new app. Visit her blog for the link. You'll have to request an invite & get a code (mine was PALEOMOM). It's a picture-sharing network with some cool features. I'm NancyLary there!
  9. N

    Pretty paleo for Crohn's?

    I've been reading a lot on diet. I'm motivated by pretty food, pretty Instagram accounts, well-done blogs...I've found a lot of good ones to follow; both Paleo & AIP. But I get really discouraged by the amount of non-Crohn's friendly items, mostly veggies and fruit. It turns me off. Anyone else...
  10. N

    Reading The Paleo Approach

    I'm still in the sciencey part. Who else had read it. Thoughts?
  11. N

    Trying to ease in but having symptoms.

    I've only been diagnosed since Feb. I'm trying to ease back into exercise but am having some pain after three measly piyo workouts. I'm feeling so discouraged. And confused. I'm on 80mg Humira. My doc is aiming for symptom-free so I'm trying to be careful with any symptoms. Nothing has changed...
  12. N

    Good video on microbiome

    Maybe if we keep talking about it, more and more progress will be made: http://www.mindbodygreen.com/0-14368/live-dirty-eat-clean-why-the-microbiome-is-the-future-of-medicine-dr-robynne.html
  13. N

    Starting Perfect Health Diet this week

    I'm not quite finished with the book and haven't stocked up on cool things like chicken feet but am cutting grains & sugar already. I'm "between" GIs after having moved so I feel like if I'm going to try a diet, this is the time. Who else is on this specific one? Or about to start?
  14. N

    Weekly Humira or a round of pred?

    We just moved a couple weeks ago which was extremely stressful, obviously. I had been feeling okay before leaving & had just started Humira (after diagnosis in feb). I tried to reintroduce probiotics which have given me terrible cramping, bloating and gas after not taking them for three weeks...
  15. N

    Crohns on fb & Instagram

    Before being diagnosed in Feb, I loved following people on fb & IG that would post healthy recipes & food pics, some general, some paleo, etc. I've had to unfollow some, especially those that post a lot of salads. Do any of you follow anyone that makes low residue eating look pretty? I'm...
See more
Top