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Recent content by NancyP

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    At a loss

    I've posted here just a couple of times, and I'm back wondering if anyone has any input for me. My daughter is 17, has had Crohn's for 2 yrs now, and has been on Remicade almost that long. Since February she has had a recurrent peri-rectal abscess that we can't get a handle on. Each time...
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    Daughter struggling with a perianal abscess

    I've posted here just a couple of times, and I'm back wondering if anyone has any input for me. My daughter is 17, has had Crohn's for 2 yrs now, and has been on Remicade almost that long. Since February she has had a recurrent peri-rectal abscess that we can't get a handle on. Each time...
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    6mp AND Remicade--is it too much?

    A little background. . . daughter dx with Crohns at 15, had "stomachaches" for years, and was always "slim". The year she was dx she had been getting more pale, more frequent stomachaches, and finally had so much nausea/vomiting/stomachache that it couldn't be ignored. She ended up getting...
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    Info on Entocort and kids?

    Popping in here hoping someone else will have info on kids getting Entocort. My 8 y/o was just prescribed this after being dx with colitis. I'm not finding any info anywhere about kids using it, except in controlled studies--everything says it hasn't been evaluated properly. We've been with...
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    Entocort for kids?

    My 8 y/o was just dx with Colitis. Doc offered to phone in an rx for him or we could wait till our consult in a week, to start the meds. Since my little guy is hurting, we opted for the meds first. Seems like there was a comedy of errors getting the meds, and now I have a bottle of Entocort...
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    Calling doctors

    Haven't posted here in months. . . . daughter's been doing so well! Recently she developed an abcess and there was some question as to whether it was a "gyn thing" or a "crohn's thing". Peri-rectal abcess, and actually 2 by CT scan. She was in extreme pain, transferred to a children's...
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    Crohns with a teenager

    I'm sure there are worse things, but couldn't name one right now. My daughter is going to turn 16 next month and was just dx in August. I hate her having it. I hate her being on Prednisone, I hate the weight gain and acne she has from it, I hate the she's depressed from the side effects and...
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    Weaning off Prednisone

    Wondering if anyone has experience with this. . . . planning to call the doc in the morning. My 15 yr old was put on Pred back when she was 1st dx in August. Been on 80mg, and now finally decreasing by 10mg/week. She's had 2 Remicades so far, next is due Nov 15th. She's down to 30mg/day but...
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    Brand New and overwhelmed

    Brand new to this forum. My daughter (15) was just diagnosed with Crohn's a week ago after an 11 day hospital stay. She had experienced stomachaches off and on for several years, but becoming much worse lately. The week before she went into the hospital she had horrible pain every time she...
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