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Recent content by NatalieMT

  1. N

    Pillcam stuck?

    I haven't posted here in a good while, I've been reading the forums on and off though - I do hope everyone is okay! I had a capsule endoscopy a week ago and I do believe, 99.9% sure, that I have not passed the capsule/pillcam. I'm still going to the bathroom and I have passed what I have eaten...
  2. N

    Frown. Complain. Repeat.

    ^^^ Yeah that's what the tshirt I'm wearing today says! Eww I feel sick, who else wants to join the club? I've had a really good year mostly, so I can't really moan about that but then disaster struck. In a week I've gone from very little pain to terrible pain, have doubled my dose of steroids...
  3. N

    Irritability...

    How do you deal with it? Ha ha! I really snapped at people today, felt so awful for it afterwards but when I'm in pain, haven't slept well, stressed etc it's very difficult to keep a lid on it all sometimes. It's still not a good excuse but I guess maybe sometimes it's understandable we all...
  4. N

    Grrr.

    I'm just in a bad mood over all my appointments and everything. Long story but I was referred for a capsule endoscopy etc at a specialist gastro centre end of last year to then see if Infliximab would be an option long term. I have found out this week they have managed to lose the referral for a...
  5. N

    Long term steroid use?

    So I went to see my consultant this morning, he's a really lovely man and we discussed the next stages in my care. I started taking Entocort a good few months ago and am still on 6mg. The Entocort has helped, I feel an awful lot better but things are by no means perfect, although when are they...
  6. N

    Yay!

    I've noticed most of the times I'll only make a significant post if something is going wrong with my life and I need to moan. Time for some happy news. I <3 Entocort! In just under 6 weeks I've gone from a point which couldn't have been much worse to feeling on top of the world. My pain...
  7. N

    Fainting?

    Recently I have been feeling frequently dizzy, which on a few occasions has led to me actually passing out temporarily. Today for example I'd been fine all day, then whilst sitting down came over very funny. My legs and arms felt freezing but the rest of my body was burning up. My hearing went...
  8. N

    Pain :(

    I'm sure a lot of us have had experiences with pain. Share? But how bad does it need to get before you say enough is enough... I'm so fed up of being so darn uncomfortable, despite the level of pain relief I'm on. Last night was the night from hell anyway, from 2am to 4am all I did was run from...
  9. N

    What Comes Next?

    I'm currently on azathioprine and pentasa, neither of which seem to be having a very positive effect. I've had awful side effects namely vomiting and massive hair loss, to the point where I have to cover the thinning with hair extensions. It's totally knocked my confidence and to me it's not...
  10. N

    New Symptom...

    Kind of embarrassing didn't want to put the topic title as anything different, I'm still getting used to the whole 'being very open' on this forum thing! I know I shouldn't be embarrassed. But basically over the past few days everytime I've been the the bathroom, just taking a pee I mean here...
  11. N

    Elemental?

    Oh yeah all my cartons arrived today, how exciting for me. Dietician thinks this is the best thing for me right now. They wanted a feeding tube but I insisted I will drink it. I take nutrition seriously but not necessarily my weight, being very small I am fine with really, but they're not happy...
  12. N

    New

    Ah not really sure what to say to be honest, I guess I should start with the basics of myself. I'm Natalie, 17 and I live in the North West UK in a place called Chester. I work as a sales assistant for a china company called Villeroy and Boch (thankfully they're sympathetic about my sick days!)...
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