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Recent content by Navsu

  1. Navsu

    This is my story and how I finally overcame the pains of Crohns Disease

    @wildbill_52280 1. Claims about "red meat" are usually based on people who eat a lot of processed meats on top of a standard American diet. I'm eating organic grass fed and finished pastured meat, not factory farmed which is full of antibiotics and growth hormones. 2. It doesn't sound like...
  2. Navsu

    Hair loss after starting Stelara?

    wow! so glad I'm reading this, in my late thirties and also experiencing some disturbing hair loss or rather thinning. Is this a common Stellara side effect?
  3. Navsu

    This is my story and how I finally overcame the pains of Crohns Disease

    I truly understand and appreciate your desire to help, but this is not the way to do it and just antagonizes people who are probably in an already stressful situation.
  4. Navsu

    This is my story and how I finally overcame the pains of Crohns Disease

    Hi All, just wanted to jump in and give my two cents worth on the Carnivore diet from my experience. First off, I strongly agree with everyone above who said that diet is totally individual and affects people with Chron's differently, I agree that there is no one size fits all diet for Chron's...
  5. Navsu

    Dealing with PEG pain

    Not sure what MMSA is but I'm sorry you were in agony for so long!!! Are you getting all your nutrition from Modulen? Are you able to eat at all?
  6. Navsu

    Dealing with PEG pain

    I'm actually eating again now so I'm not reliant on Modulen, but it's a constant challenge navigating good/bad foods. Also emotional states effecting my ability to make good decisions is just another thing to deal with. When I had the PEG no cream or ointment really helped:/ If I can't eat...
  7. Navsu

    Dealing with PEG pain

    This thread is really old by now, but in case anyone reads this here's a short update: I ended up taking the PEG out after a year of agonizing pain and discomfort. The insertion site was always painful, inflamed and never healed. I was constantly leaking liquids out of the PEG site. It only...
  8. Navsu

    Recommended Books for Crohn's Disease, Ulcerative Colitis, and other forms of IBD

    if no one's mentioned this one, it's a bit dated but still very helpful: Ask Audrey: The Author's Personal & Professional Experience in the Day-To-Day Living With Inflammatory Bowel Disease 2nd Edition by Audrey Kron (Author)
  9. Navsu

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    Yay! I got a bunch of cookies at the dispensary today. I was told they are rather strong and heavy on the THC, can't wait to see what they are like. I'm hoping they give me some crazy munchies without making me too tired. Happy day :):):)
  10. Navsu

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    hmmmm, I doubt that my dispensary has lollipops, but maybe hash oil? I don't have any experience with that though.... can anybody tell me how hash oil compares to vaporizing? If you use too much oil is that like overdosing on cookies? because that happened to me once and was NOT very fun (made...
  11. Navsu

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I don't know, cookies are relatively discreet but I'm paranoid about them being sniffed out at the airport and causing a major international scene...
  12. Navsu

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I'm flying abroad in a week for 12 days and can't bring my MM with me across international borders :( I'm bummed because I count on smoking everyday to be able to eat since my appetite is so poor. I'm not even worried about the pain since it's not that bad right now, I just hate the thought of...
  13. Navsu

    Dealing with PEG pain

    Hi all, I just had a PEG put in yesterday for the first time. I've been on TPN on and off for about two years now and needed a break from it so this was my best option (I'm severely underweight and unresponsive to medication). So my question to all of you out there who have gone thorough this...
  14. Navsu

    Living with chron's

    living with chron's Hi everyone! Before I start, I just had to say how impressed I am with this forum and how exciting it is for me to have found such a supportive, open and wonderful community. It sucks that we ll have a nasty disease in common, but it's great to hear other people's...
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