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Recent content by newdiagnosis

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    Pancreatic Lesion

    Thank you for your reply. Yes, I am getting a second opinion. They are not even sure if I have pancreatitis. It's basically a pancreas cyst in the uncinate process. They aren't sure if there is pancreatitis, as most of the pancreas looks fine. They found the lesion about 2 years ago, and I...
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    Pancreatic Lesion

    Hi All, Over the past few years I have been monitoring a pancreatic lesion. They say its either a cyst or a branch duct Intrapapillary Mucinous Neoplascm (IPMN). When I spoke with my GI doc he said there may be some low grade pancreatitis causing this. Anyone have any experience with this? My...
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    Modulen?

    Lol. Thank you for the advice. May try to supplement.
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    Modulen?

    Anyone have any experience with Modulen? I am going through a mild flare right now and thinking of trying this out. How is it used? Is it better than just a protein shake like ensure?
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    Low dose Prednisone

    Maybe coming off the prednisone was not related to the flare? 3 years after stopping prednisone does not seem like it may be related?
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    COVID 19

    Anyone worried about the coronavirus and being on stelara?
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    Coronavirus/Covid-19

    I'm on stelara. Also worried. Although stelara seems to be less immunosuppressive than other medications?
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    Xifaxan

    I am on my first round. Seems to be working well. It's weird treating this, as I feel like when I had a real crohn's flare diagnosis it was easier to treat. Now I am not sure if I am treating the IBS or IBD. I hope it still continues to work after I discontinue the xifaxan.
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    Xifaxan

    how is the xifaxan working?
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    Xifaxan

    I have recently had symptoms of what I thought was Crohn's (gas, bloating, cramping, soft bowel movements). MRI shows no active inflammation. Tapering on Uceris. My doctor says I should try xifaxan. Anyone have experience with this drug?
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    What meds have failed before you starred stelara?

    Interesting. Only one injection per year?!
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    Repeat Loading Dose of Stelara

    So apparently the MRI showed no signs of inflammation. Doc thinks it may be SIBO. Although I am thinking maybe these symptoms are caused by the Florastor probiotic i've been taking.
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    Stelara and Neuropathy

    Yeah, mine resolved. Don't think it was stelara. I think it is most likely the Flagyl for you.
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    Stelara Cancer Risk

    I've been on stelara for over 2 years. Does anyone know if Stelara has an increased cancer risk compared to other biologics. And if so, is it worth switching to an anti tnf. Stelara is the only drug I tried.
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