• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by newdiagnosis

  1. N

    Xifaxan

    I am on my first round. Seems to be working well. It's weird treating this, as I feel like when I had a real crohn's flare diagnosis it was easier to treat. Now I am not sure if I am treating the IBS or IBD. I hope it still continues to work after I discontinue the xifaxan.
  2. N

    Xifaxan

    how is the xifaxan working?
  3. N

    Xifaxan

    I have recently had symptoms of what I thought was Crohn's (gas, bloating, cramping, soft bowel movements). MRI shows no active inflammation. Tapering on Uceris. My doctor says I should try xifaxan. Anyone have experience with this drug?
  4. N

    What meds have failed before you starred stelara?

    Interesting. Only one injection per year?!
  5. N

    Repeat Loading Dose of Stelara

    So apparently the MRI showed no signs of inflammation. Doc thinks it may be SIBO. Although I am thinking maybe these symptoms are caused by the Florastor probiotic i've been taking.
  6. N

    Stelara and Neuropathy

    Yeah, mine resolved. Don't think it was stelara. I think it is most likely the Flagyl for you.
  7. N

    Stelara Cancer Risk

    I've been on stelara for over 2 years. Does anyone know if Stelara has an increased cancer risk compared to other biologics. And if so, is it worth switching to an anti tnf. Stelara is the only drug I tried.
  8. N

    Repeat Loading Dose of Stelara

    Just got the MRI yesterday. Anxiously awaiting the results.
  9. N

    MRI Enterography

    I am scheduled to undergo an MRI with gadolinium for a recent crohn's flare. I am having some reservations since I already had 2 MRI scans before. Should I ask my GI to schedule me just with oral contrast? I've just been reading various reports of long term toxicity with repeated MRIs. Any...
  10. N

    Reloading dose of Stelara....any success?

    Chronic_Ramgles, any luck with the reloading dose of stelara?
  11. N

    Repeat Loading Dose of Stelara

    Hi Everyone, Just want to say I appreciate this site as an amazing resource! I have been on stelara for 2.5 years, and it has worked amazing. Over the last 2 months I have had a flare. Few months prior to the flare I was on augmentin for a sinus infection. Previously I responded very well to...
  12. N

    CVS Caremark cooler

    I think you should be fine. I had a similar issue and they said the medication can be left out up to 8 hours in room temperature before there are any issues.
  13. N

    Stelara stopped working

    I am beginning to wonder whether I have lost effectiveness from the Stelara. I have been on Stelara for 2.5 years. Last 2 months started getting symptoms. I was previously on every 4 weeks, then de-escalated to every 6 weeks. Getting MRI this coming week to see where inflammation is currently...
  14. N

    Crohn's Flare with Normal Inflammatory Markers?

    Symptoms have improved markedly on uceris, but still have bowel sounds and gas. Previously that has been a sign of active disease. Maybe adding oral prednisone would help? Definitely no longer having urgency and diarrhea like i did before.
  15. N

    Eye Problems / Iritis

    You would know if you have iritis. Decreased vision and light sensitivity are the main symptoms.
Top