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Recent content by NicoleKS

  1. NicoleKS

    No Folic Acid with Methotrexate?

    So, I'm starting MTX and after doing a little searching, I learned that it can deplete folate. I'll be taking a low oral dose every week. I called my GI's nurse and she said that he doesn't recommend taking folic acid with MTX. Anyone else's GI? So, I pushed further and asked, "Well, if I...
  2. NicoleKS

    17 Years of Symptoms and No remission.... Am I Alone??

    I started getting symptoms when I was around 9. I vividly remember being in a Pizza Hut with my dad and sister and then running to the bathroom in the Pizza Hut after eating and it was all downhill from there. Anyway, after 17 years of non-stop diarrhea, pain, and symptoms of SIBO, nothing has...
  3. NicoleKS

    I've NEVER Been So Humiliated....

    I have to get this out and other IBDers are the only ones that will understand... I'm in a CNA class and today I wasn't feeling so great. I had to go poo over our lunch break. Outside the bathroom door I could hear the other students saying things like "Oh my god that's so gross! I'm going...
  4. NicoleKS

    ALL Meds have failed me! Why?! :(

    Why does my body hate me?!?! Okay, I still have Cimzia and Methotrexate left as options that I haven't tried yet. In the past 2 years I've taken: Asacol, Entocort, Prednisone, 6MP, Humira, Remicade, Imuran. I've even had 2 feet of small bowel removed. And yet here I am with symptoms of a...
  5. NicoleKS

    Did Remicade work for you? How so?

    Did it reduce the amount of times per day you were running to the bathroom? Reduce your stomach pain? Reduce your sed rate/inflammation? I'll be getting my 3rd infusion this Friday and I'm still hoping it will do something for me. I'm waiting to find my "miracle" drug that puts me into some...
  6. NicoleKS

    My GP thinks I'm "abusing" the ER

    To start off, I have been flaring for the past week or two. Abdominal pain, diarrhea, nausea, joint pain, pink eye, bloating, gassy (with the "farty burps"). In the past week and a half I have been to the ER twice. I've been to the ER several times before for bad flares and it's only when I...
  7. NicoleKS

    Autoimmune Disease Research

    I just wanted to share this with you all... via the American Autoimmune Related Diseases Association: Last day to vote for autoimmune diseases and environmental triggers to be included in the NIEHS strategic plan for research (2012-2017). We are in 2nd place!! It's imperative that everyone...
  8. NicoleKS

    Crohn's and SS Disability

    I was just wondering if anyone who has Crohn's disease is receiving disability? I was reading online a bit and saw that it was rare to get approved for it. Before my surgery I had several strictures, fissures, scar tissue, inflammation, etc and no medication I tried worked (the meds actually...
  9. NicoleKS

    "Relapse" just 6 weeks after my resection?

    I had 2 feet of small intestine/colon removed on February 3rd. And today for the first time since surgery, I feel awful. Just like I did before surgery. Stomach pains and constant growling noises. My GI said some people have a recurrence of Crohn's in the hospital immediately following the...
  10. NicoleKS

    What products work well to reduce surgical scar appearance

    What products to you recommend for scarring? I just had my resection done and I'm curious to know what products work well as far as minimizing the appearance of the scar.
  11. NicoleKS

    Had My Resection Done.... (Pic!)

    It was scheduled for Feb the 15th but I was hospitalized on the 30th of Jan for an obstruction so the doctors and surgeon decided to go ahead with the resection on the 4th of Feb since I was already in the hospital and things weren't improving. Recovery sucks. I feel like crap. My stomach...
  12. NicoleKS

    Surgery is Next... I'm Scared.

    Since my diagnosis I have been on Asacol, Entocort, Prednisone, 6MP, and Humira. None of these medications have worked and according to my Small Bowel Follow Through I had done earlier this week, it's actually gotten worse. So now my GI wants to refer me to a surgeon for a surgery consult to...
  13. NicoleKS

    Vitamin B12 Injections

    For the past couple of months, I have been absolutely exhausted.... I was curious about B12 injections. I think I'll ask my GP about them but I also thought I'd ask for those of you who have had them. Thanks!!
  14. NicoleKS

    My Butt Hurts!! (TMI!!)

    It feels like "something" is in there and it hurts when I poo and I did the nasty in the back door the other night and I wanted to cry. I guess I should go get a mirror and look down there. Siiiigggghhhh. =(
  15. NicoleKS

    Crohn's Ribbon Tattoo

    I would like to get a purple ribbon tattoo representing hope for a cure for Crohn's. What two words should I have written on the tattoo? 'Hope' and 'Faith' or 'Hope' and 'Believe'. Or something else all together??? Any ideas? Thanks =D
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