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Recent content by nikimazur

  1. nikimazur

    How many immunosuppressants?

    So, my question is- How many immunosuppressing medications are you on? Do any of you also take antibiotics daily/weekly to prevent infection? I've been on Humira for the better part of a year. I added in Azathioprine and prednisone after being diagnosed with Autoimmune hepatitis in May. I...
  2. nikimazur

    Crohn's and Autoimmune Hepatitis

    I know this is a long shot...does anyone else have Crohn's and Autoimmune Hepatitis? I was initially diagnosed with Crohn's, three years ago in April 2011. I was doing decently, maintaining on Pentasa and Entocort (with prednisone as needed) until this past December, when I suffered a major...
  3. nikimazur

    Goodbye Mr. Gallbladder

    Started two weeks ago with low grade fever, and funky pain under my rib cage. I was sent to the ED by my GI doc, and had a ultrasound and chest X-ray. The ultrasound showed no stones, but some inflammation. Went for a HIDA scan with CCK Monday, and learned today that my gallbladder isn't...
  4. nikimazur

    Nonalcoholic Steatohepatitis (NASH)

    At the ripe age of 25, my liver has decided to give up. The past year, my ALTs and ASTs have steadily increased, and my liver has become even more fatty. I was diagnosed with NAFLD last summer. It also doesn't help that I have a lovely benign tumor sitting on my liver as well. I am supposed to...
  5. nikimazur

    Any treatment that does not impair liver function?

    So after trying asacol hd, pentasa, Lialda, entocort and prednisone, I'm on to the next set of Crohn's meds. My Crohn's was in its very early stages when diagnosed, and had success with just a 5-Asa at first, then needed to add in Entocort, Entocort stopped working so Prednisone, and now on to...
  6. nikimazur

    Reconfirmed diagnosis, with liver issues

    So I have strayed away from this forum, after my last video endoscopy showed no signs of crohns. My doctor said he was hesitant to call it Crohns, since i have had two colonoscopies that showed nothing, one that showed minor inflammation but that we were going to treat it as crohns. As a last...
  7. nikimazur

    Don't you just love...

    When you're put through rounds and rounds of testing and medications yet doctors still can't figure out what's wrong with you? So extremely frustrated at this time. My Crohns diagnosis is sticking, but now have another yet to be determined autoimmune disorder. Weird persistant swollen glands...
  8. nikimazur

    Beware of clindamycin

    My immune system has been acting strange this past week, including intense swelling of all my lymph nodes and for lack of a better term, feeling like crap. After getting to urgent care(almost like an ER but for not as severe cases), I was seen by a doctor who spoke very little English. I...
  9. nikimazur

    Swollen lymph nodes

    So my body, including tummy has been doing pretty good since starting my newest cocktail of meds.yesterday, though I woke up extremely sore swollen lymph nodes under my chin. I've never had problems with those glands, even when extremely sick with bronchitis, pneumonia, swine flu, and thought it...
  10. nikimazur

    Rheumatologist?

    Has anyone seen, or been referred to a rheumatologist? My GI is sending me to one, and I have my first appointment in two weeks. My arthritis has been out of control lately, along with having a terrible flare. I just don't know what to expect going in. I do know my GI is worried about osteo...
  11. nikimazur

    Crohn's and Jewish Decent

    I was brought up Catholic, with parents who were first descendent Polish and Italian immigrants. My father, who is Polish, is of Ashkenazic descent, was raised Catholic, but obviously had Jewish ancestors. Though I know Crohns is not specific to certain religions or ethnicities, there are...
  12. nikimazur

    Colonoscopy, uh yay, I guess..

    So next week I'll be having my 2nd colonoscopy in three months, and it will be the 3rd in the past six months. Right now I'm not sure whether to laugh, cry, or thank the man upstairs for having amazing insurance. I wish the US had a more streamlined health records database, for the only reason...
  13. nikimazur

    What's next after Asacol

    To make a long story short, was on Pentasa, Bentyl and Entocort which all poorly controlled my Crohn's. Went to new Dr, who thought I only had IBS was then treated with Elavil and Lotronex (which obviously didn't work), and quickly ran to an IBD specialist, who reconfirmed my Crohn's diagnosis...
  14. nikimazur

    My story

    Let's see. I suffered a Traumatic Brain Injury eight years ago. Heavy duty medications/ therapies/ being on feeding tubes and months in hospital. About 4 years ago started experiencing stomach issues, mostly nausea and pain, and was given a diagnosis of gastritis, due to heavy medication use...
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