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Recent content by NMMom

  1. NMMom

    SS Vent

    I'm sorry but I just have to be mad for a sec and I knew you all would understand. :ymad: Ellie has been sick now for over a year. Just when we think we are close to remission she has another set back. She has missed so much school I'm almost afraid that one day the state dept of education...
  2. NMMom

    Sorry for going MIA - Updates

    Hi Everyone :) I have to start by saying I'm so sorry I've been hiding but I know you all understand! The early months of diagnosis are so hard and the emotional roller coaster is unforgiving. I've still been logging on and reading posts on occasions and I've been keeping all your kids in my...
  3. NMMom

    Worst fear is coming true

    Hey everyone. Sorry I haven't been on much but my head has been swimming and my heart breaking even more than I could ever fathom. The doctors are nearly certain that Ellie has not only very severe UC but also has Primary Sclerosing Cholangitis, or PSC. We are devastated. Apparently this...
  4. NMMom

    Hard few weeks, Horrible lab work

    Hi everyone. I'm so sorry I haven't been around much. As my "real life" friends know when things get me completely overwhelmed I seem to go on autopilot in terms of taking care of what I must and then I hide under a rock the rest of the time. This is one of those times. Ms. Ellie is...
  5. NMMom

    Heading to the ER

    Ellie has been taking 40mg of prednisone and 500mg three times a day of pentasa. She seemed to be feeling a bit better but was still very tired and pale. However the last week she has eaten like a large man - she never feels full. This afternoon she started to act differently. Before bed she...
  6. NMMom

    And we have a diagnosis....

    Sorry for starting a new thread, I'm still new and the message board stuff and don't know all the do's and don'ts yet. Ellie was diagnosed with severe uc. Her large intestine looks like a rotted black pipe. They took 19 biopsies so we'll have even more info in a few days. Her small...
  7. NMMom

    Wish us luck

    Today is Ellie's endo and colonoscopy. We have her all prepped as best we could but there is still blood coming out when she poops, however, the rest looks just like water. I hope we get some answers today, can't go on like this. :(
  8. NMMom

    Parenting a child with IBD

    Hi everyone, Thank you so much to everyone who took the time to respond to my thread. The past few days have been full of ups and downs. One minute I'm crying (in private of course!) and the next minute I'm full of hope and ready to become an advocate and change the world for people with...
  9. NMMom

    Today my heart breaks.

    Hi everyone. Today is the first time I've posted. Over the past few weeks google searches have led me here and I've been comforted my knowing my family isn't alone. I have a five year old daughter and a three year old son. Just about a year ago my daughter started waking up in the middle of...
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