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Recent content by nofun

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    does a flare mean the biologic isn't working?

    I have been on Entyvio for 2 years and experienced 2-3 flareups during that time. The drug never worked 100% for me, but the improvement is good enough to continue the treatment. I feel better, have a substantial improvement in symptoms, but Crohn's is still active.
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    Vagus nerve and Crohn's disease

    There are lots of resources on the web describing how to manually stimulate the vagus nerve. This probably would not be strong enough to help with Crohns, but maybe it is worth trying.
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    Vagus nerve and Crohn's disease

    I came across some articles discussing trials where the vagus nerve stimulation was used in the treatment of chronic inflammatory bowel diseases. Does anyone have some experience with such treatment? Is this something that can be done at home?
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    VSL#3 probiotic. Opinions

    Same here, I didn't see any difference in my symptoms when taking it. I wasn't taking any biologics at that time. I think it is worth trying. You can always stop if it doesn't work.
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    switching treatment

    Did you notice a decrease of symptoms right after an injection and then getting worse over time? That would explain why the doctor increased the frequency. I don't have this...I still feel bad right after the shot. I will probably wait couple of months before trying to switch the drug. I had...
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    switching treatment

    I am on Entyvio which worked well for the last 2 years, but symptoms returned in the last few weeks. When a biologic loses effectiveness do you switch right away to a new drug? I had a brief episode or symptoms while being on Entyvio but decided to hold on and the symptoms subsided. How long...
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    Finally found something that works for me

    Good for you! I wish it will keep working for you. It is always worth trying especially that improving your breathing is good for you regardless if it helps with Crohns or not.
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    Foods that triggering in me

    I stopped eating meat at one point and the improvement was immediate. I helped for about 2 years, but then symptoms returned.
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    Proposed Crohn's model and treatment approach

    There is always hope and I am sure with time a solution will be found. What is interesting that we still don't know for certain what is causing the disease. Can an actual treatment be found without knowing the underlying cause? The anti-tnfs seem to work by addressing the resulting inflammation...
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    Humira doesn’t seem to be working

    The numbers as reported on humira.com: https://www.humira.com/crohns/about-humira/results-with-humira Remission at 4 weeks: 21% (study 1), 36% study 2 Symptom relief at 4 weeks: 58% (study 1), 52% (study 2) Remission achieved and maintained: 40% (week 26), 36% (week 56)
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    Entyvio has stopped working for me after about 14 months

    I have had a deterioration in symptoms after about 8-9 months on Entyvio. It never got very bad and I was able to manage without a visit to a doctor. It improved after about 4 months - 2 infusions. I hope Stelara works for you.
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    Feeling Defeated a Little

    I went through a very long (10 years+) period of constant flare, and only recently went into remission. I was lucky not to be in pain, but the constant exhaustion, low energy level, and being chained to the bathroom made my life miserable. I don't know what to tell you, and this is not an...
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    A good sleep for a better life ! Personal experiment

    I am napping every day, and although it didn't help with Crohns it did help with the overall well being. When you wake up after the nap you should feel completely refreshed, like waking up in the morning. The biggest advantage to me is the gain of time. For less than 30 min of napping in the...
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    Whole Food Plant Based diet (WFPD) - with a one-month diary template for sharing your results

    Thank you for posting this. Didn't have time to fully reviewed it yet, but it looks promising. No one is selling anything here, and the information is free...I don't think the criticism so far is justified.
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    Cant we all help them figure this out?

    I spent years trying to figure it out just for me. Forget about other people with different DNA and different predispositions. I can control what I eat, what I do, and what medications I take, but still I was not able to solve the equation. Maybe there is no solution? There are so many factors...