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Recent content by Nyk24

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    My 1st day on AMAT and how I got my funded treatment

    Thanks Delta that is good to know.
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    My 1st day on AMAT and how I got my funded treatment

    Thanks Delta for your kind words and the suggestions TBH I am probably a bit of an odd case for my gastro team. None of know if any of rhe AMAT drugs are having an issue with my declining kidney fumction. If I stop AMAT I could at worst have a few weeks more of remission or twenty plus years...
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    My 1st day on AMAT and how I got my funded treatment

    Its been almost two years since my last update (I know real bad huh). I am still in remission after 2 years. Kidney function stil worsening. How I am not on dialysis yet I don't know. I have been on the list for a new kidney for a year now. If I do end up on dialysis which is looking that way...
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    Another "I started Anti-MAP" thread

    Hi Kas8173 hope you are still doing well. I am on AMAT and my 2 year NHS funding is just about to end. I am thinking of continuing for a little while longer until I get a new kidney (thats an unrelated long story). How did you get a private perscription and how much did it cost? On a side...
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    My 1st day on AMAT and how I got my funded treatment

    Before I start guys make a cuppa or a coffee as this is going to be a long post. I had a kidney transplant just over 20 years ago because I got food poisoning (compylerbactor). Since January 2015 I started to feel pain when going to the loo, go thought it was piles. I went back as it didn't go...
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