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Recent content by Nytefyre

  1. Nytefyre

    Yeppers, I'm a Newbie to the Aza/Imuran Club

    The title says it all! Just swallowed my first two pills today. That's 100 milli's. So, it will be 100 mgs for the first 7 days, then up to 4.5 pills/225 mgs thereafter. Blood tests every couple weeks for the beginning months or so. I decided to jump off the study drugs/free meds but no...
  2. Nytefyre

    IBD and Disability

    Hi all, This question may apply only to the Americans on the board, but if I'm wrong(and it seems like I would have to be), please respond. I tried to go the disability route a couple of years ago. The process took so long that by the time all the appts I had to go to rolled around, I was not...
  3. Nytefyre

    Take Steps

    Has anybody participated recently? I signed up last year, raised money(only $250), but when the time came to walk I was flaring. At least the money went to a good cause. Maybe this year I will try the Peachtree Road Race in Atlanta and/or the Crohn's walk. Take Steps
  4. Nytefyre

    Pica

    Anybody have any experience with Pica? I used to eat ice like crazy. I thought it was normal. I would always have one of those big coffee mug thingys filled with ice. It took my mother saying that she didn't think it was normal to eat as much ice as I did for me to even think anything was...
  5. Nytefyre

    Sticky Crohn's Forum Candle Room

    I light a candle for my wife's mother, Monica. She went from symptoms to diagnosis to death in two months last year. Lung cancer.
  6. Nytefyre

    Any side effects with Vancocin (vancomycin)

    So I haven't posted in a while... For most of the year I was on a study drug called Ustekinumab. The only problem was that I had to take Cipro and Metronidazole the entire time. Towards the end of the study in November, I noticed that I was losing more blood than usual ( I tend to lose blood...
  7. Nytefyre

    Ustekinumab

    Hey All, I thought I was going to start Cimzia soon but my GI has suggested another medicine called Ustekinumab, aka Stelara. It has been FDA approved for psoriasis but is being tested for Crohns. Anyway, I start with a 5 hour pre-screening on Monday, then the actual treatment in several...
  8. Nytefyre

    Surgery Question: ER or Elective?

    For all those out who have had surgery, how did it happen? Was your surgery scheduled or did you have to go to the ER? My first surgery was scheduled, but I didn't make it. I blame Las Vegas! You see, my wife, some friends, and I were in Las Vegas. I had a horrendous time of the tables. Bad...
  9. Nytefyre

    Hello...introduction

    Hello all, Like a lot of people, I have been lurking on the boards for a while. I decided I should stop lurking and hop into the water, so here I am. I am a 36 year old male from Atlanta, Georgia, USA. I was diagnosed with Crohn's in 1993. Up until that point, I had been steadily losing...
  10. Nytefyre

    IV iron

    Hello all, First post here. Quick background. Diagnosed w/ Crohn's 15 years ago. Had a resection in 2007. Have had many blood transfusions. Now, I am starting IV iron soon. Once a week for the first 4-6 weeks, then once a month thereafter until iron levels become normal. I wanted to know of...
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