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Recent content by okhoney

  1. okhoney

    New Kind of Abdominal Pain - Concerned

    I've been in a pretty bad flare for almost a month now and the last week or so I have been experiencing some abdominal pain that is atypical to the kind of pain that I normally experience. I am totally accustomed to cramping during bowel movements and sharp pain and urgency around running to the...
  2. okhoney

    How do you make the decision for surgery?

    After 7 years of Crohn's that has been refractory to just about every treatment available, my GI (whom is wonderful and whose opinion I value and respect) thinks it is finally time for surgery. The last thing he said to me as I walked out of his office a week ago was "it's the right thing to...
  3. okhoney

    Stelara vs. Tysabri

    Like many of you I'm sure, I'm nearing the end of the "treatment" road so to speak. I have failed, not responded to, or been allergic to every conventional treatment. I previously was in a clinical trial for the stem cell drug Prochymal, which was a miracle worker in my book, but the drug has...
  4. okhoney

    Awful place between severe and moderate?

    Roughly 2 years ago my Crohn's took a turn for the worse. I slowly got sicker and sicker, losing 50 pounds, having multiple issues with fistulas and severe abscesses, and being in and out of the hospital. I went through all of the medications: intolerant of mesalamines, my body couldn't handle...
  5. okhoney

    Scared and running out of options

    I'm not sure where else to post this, but I thought the stoma sub-forum might be the best place for the advise I need. Treatment wise, I feel like I'm nearing the end of the line and while my doctor and I haven't talked about surgery in a few months, I have a feeling that we're headed down that...
  6. okhoney

    Another One Bites the Dust

    Yesterday marked my third remicade infusion, which is sure to be my last. During my second infusion, I went into anaphylactic shock, they shot me full of benedryl and steroids and slowed down the dose drastically (I was at the hospital for over 7 hours by the time it was all said and done. While...
  7. okhoney

    Abscess Post-Surgery. HELP!

    I'm not even quite sure where to begin. To sum up (you can also refer to my previous post seton and PAIN!), I had a fistula exam under anesthesia wherein they inserted a seton. After the procuedure, which I was told several times was non-invasive and relatively painless, I was having constant...
  8. okhoney

    Seton and PAIN!

    Last Wednesday I had a fistula exam under anesthesia and at that time, they put in a seton. On Tuesday night before the surgery, I had a severe panic attack, because I was worried about them putting in the seton (which is exactly what happened). 7-10 days prior to the exam, I started to feel...
  9. okhoney

    Frustrated with the Process

    I had a colonoscopy 2 weeks ago where a perianal fistula was discovered. The only chance I got to talk to my GI about this was when I was coming off of the anesthesia and details are still a little fuzzy. I've been trying to wade through the next steps as instructed by my doctor, but I am...
  10. okhoney

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I definitely see the benefits for Crohn's patients and have used it a couple times myself (not enough to see a major difference, but in retrospect it did help quiet things down a bit). As someone who is always VERY sensitive to the side effects of medications and has already run down the list of...
  11. okhoney

    Flagyl and Diarrhea?

    I started Flagyl for the first time a few days ago after a colonoscopy revealed a peri-anal fistula. I am on 1500 mg a day (500 mg 3x a day) for the next 30 days. I have been having diarrhea for the past few days and I'm wondering if it's the flagyl. For the last month or two I was more...
  12. okhoney

    4 Years, A Firm Diagnosis, and More Anxious than Ever

    I was diagnosed with IBD four years ago. At the time, it was tentatively read as ulcerative colitis, but I could not get a straight answer out of my GI either way (not an uncommon trend as I would later learn). He unfortunately did a terrible job of explaining to me what the disease was and I...
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