• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Older Crohner

  1. O

    Can Humira provoke Multiple sclerosis (MS)

    FDK80....Yes, I had to stop Humira because of a demyelinating spinal cord lesion. My left shoulder, arm and chest had a decreased sensation. Tests were run and they found a lesion at C4 level....also a couple on my brain that they said were questionable. I took Humira for Crohns but like...
  2. O

    Staying Positive

    Funny, I was on mercaptopurine (same family as aza) but they stopped it quickly due to fever reaction (104)
  3. O

    Staying Positive

    My calprotectin jumped from 300+ to 1000+ and I can't get off entocort. I've been on it probably over a year and steroids at my age (or any age for that matter) are not good
  4. O

    Considering stopping Humira after 17 years, looking for advice.

    Liquid Bacon....I feel your concern. I too was on Humira and switched to Entyvio. When I was on Humira, I had a psoriasis-like rash at my temples/hairline, behind my ears and my left wrist area. They biopsied the rash on my wrist and it did not come back as psoriasis. But, it was persistent...
  5. O

    Staying Positive

    Thanks My Little Penguin....I've been on 9 mg Entocort, Entyvio every 4 weeks (not 8) and I was on weekly methotrexate subcutaneous. Have since gone off methotrexate because of covid risk. Calprotectin was over 1000...so a change to Stelara. The plan is to stay on Entocort til we see...
  6. O

    Staying Positive

    Hi everyone...This is new to me. After having CD for 50+ years, I've joined a forum! Anyways, I'm in hopes of learning from others what I can do better. I've been on Remicade, Humira and Entyvio ( in that order). Today was my induction infusion of Stelara. It seems from what I've read...
  7. O

    Aging with Crohn's

    It's very scary when you decide to make that jump into Medicare. It's like falling into the "great beyond" and you hope it all works out. That's one reason why I continue to work.
  8. O

    Aging with Crohn's

    I believe My Little Penguin was referring to when you go on Medicare. Your Jenssen Care Co Pay assistance is no longer available once you sign up for medicare. I believe that patients with any form of government insurance do not qualify for the CoPay Assistance Programs.
  9. O

    Aging with Crohn's

    Agreed...So when I go on Medicare, I will be paying a Part D copay (Stelara injection) if I can't have it done at the doctors office. I wonder what happens when you get infusions under Part B....lf you would eventually end up in the donut hole. Food for thought.
  10. O

    Aging with Crohn's

    Kiltubrid.....I have had CD for over 50 years (age 67 now and diagnosed at 16). So, you and I have seen many changes over the years! I ran across this guide today when I was researching Stelara. If you have infusions or injections at a doctor's office, it looks like it is covered by Medicare...
  11. O

    New here. Dont know where to go from here.

    This is my first post, so bare with me. I agree with Jo-Mom. I am 67 and was diagnosed with UC at the age of 16. Back then all they had was sulfasalazine and prednisone. Needless to say, I was on steroids for 16 years (in the beginning I weighed 87 lb....bad disease). After children I went in...
Top