• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

pdx's latest activity

  • pdx
    Pilgrim, the two formulations of oral iron that haven't caused stomach issues for my daughter are iron gluconate and iron bisglycinate...
  • pdx
    pdx replied to the thread Heard from Doc today.
    Really glad to hear about the formula change to Peptamen. I hope that helps!
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Hug Hug.
    Update: - H&H are down...a lot...in two weeks . Crit just under normal, HGB at the low end barely holding on - Albumin down but right...
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Hug Hug.
    Things are not better. Frequency still through the roof, still bleeding. She can't go back to school like this. Message in to...
  • pdx
    pdx reacted to Tesscorm's post in the thread Vaccine - 2nd dose interval with Hug Hug.
    I guess this was the thread where I was posting re S's scope/CT (has certainly drifted from the title! )... anyway, I don't have the...
  • pdx
    All I can tell you is that iron is very confusing! Last time my daughter's iron was checked, her red blood count, hemoglobin...
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Hug Hug.
    Hey y’all! A bit of up and down here. Mostly O losing weight and feeling faint/dizzy. Did labs and everything was spot on so not...
  • pdx
    pdx reacted to crohnsinct's post in the thread 5yo Son Diagnosed 1/20/21 with Like Like.
    "And I sort of felt so lucky and grateful and happy even though obviously I still have this disease to deal with" So true @Delta_hippo...
  • pdx
    pdx reacted to Delta_hippo's post in the thread 5yo Son Diagnosed 1/20/21 with Like Like.
    I really understand what you are saying and just wanted to post to say thinking of you and to stay hopeful. In my case it was me that...
  • pdx
    Got the official word He gets to participate Bloodwork is done 3 months after first shot so he can get that done now We schedule at any...
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Like Like.
    Weekly Humira was approved on appeal! Woohoo! The two hospital admissions helped no doubt. But being fair, I am actually shocked that...
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Like Like.
    Definitely going home! Since MLP didn't specify a date I guess her 3pm estimate counts as closest! We are doing her last bolus feed...
  • pdx
    pdx reacted to crohnsinct's post in the thread Heard from Doc today with Like Like.
    Time out! The formula they are using is 350 calories per carton so 5 cartons (what they want her discharged on) is 1,750 calories. The...
  • pdx
    pdx replied to the thread Heard from Doc today.
    Everything about this is crazy. They put in a G tube but they're giving her Ensure? She should definitely be on elemental or...
  • pdx
    pdx reacted to njprrogers's post in the thread Vancomycin with Like Like.
    Hi all Just thought I'd update you on J's progress. Last year he was newly diagnosed and failed on Remicade / Humira / EEN / Steroids...
Top