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Recent content by Peanut75

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    Adverse reaction during Remicade Infusion

    Dr was pleased with the therapeutic response @ 19.2 Inflammation did go down by half but it is still high. We will re-evaluate in 3 months. Pain continues at night and when she wakes up in the morning. I questioned if it was possible she should be checked for h. pylori.
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    Adverse reaction during Remicade Infusion

    I have to go back to look at the history, but her Remicade infusions were every 6 weeks, levels were around 10-15 the first year and a half. Humira (with mtx) is currently at 19.2. Even when on Remicade, her calpro had never been below 250.
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    Adverse reaction during Remicade Infusion

    So I was thinking….. if we never reached remission with Remicade, even having good drug levels ( in the beginning) and currently in the same place ( good drug levels but still inflammation). Do you think another drug class should be considered? (Crohns in ileum).
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    Adverse reaction during Remicade Infusion

    Thank you. I’ll keep you posted on what the dr recommends next week.
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    Adverse reaction during Remicade Infusion

    She’s 15- 40 mg every other week. Mtx is 15 mg weekly. She won’t do een.
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    Adverse reaction during Remicade Infusion

    Hi! I wanted to give you an update on my daughter Your insight is always so helpful. We have a gi appointment in two weeks. Here is some information since I last posted in June when my daughter had a bad reaction to Remicade, which resulted in the switch to Humira. August Calpro: 1000...
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    Adverse reaction during Remicade Infusion

    Hi All, So, Humira was approved. Her first loading dose was last week. No adverse reaction. We will see if symptoms begin to improve in the coming months. Fingers crossed. Thank you for your advice and kind words. I appreciate your knowledge.
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    Adverse reaction during Remicade Infusion

    Well, scopes were scheduled a few weeks ago for July since it would be a good time … summer, so maybe they would be changed now….. Have any of your kids have an intestinal ultrasound?
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    Adverse reaction during Remicade Infusion

    Thank you. We decided on the pen.
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    Adverse reaction during Remicade Infusion

    So, it was decided we are going to try Humira. It was submitted (stat) to insurance today. I contacted our case manager @ the insurance co and gave her a heads up that this is expedited. Colonoscopy is scheduled for July.
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    Adverse reaction during Remicade Infusion

    So much info. Thanks everyone. I’m so fortunate to have found this group. Results were received and I’m awaiting a call from the drs office.
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    Adverse reaction during Remicade Infusion

    Thanks for all of the advice. My daughter’s ibd is in fact located in her terminal ileum. I was told that Entyvio could take up to 6 months to work. My daughter refuses acupuncture. I even offered for her to watch me get it but it was a hard”no.” She is currently trying hypnotherapy. We have a...
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    Adverse reaction during Remicade Infusion

    Hopefully, we can avoid steroids. I heard from our consulting Dr out of state as well as our GI’s partner . Both discussed Humira and Entyvio. Humira will probably be the easiest to get a stat through insurance but no one wants to make decisions until labs come back. IB Stim is a device that is...
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    Adverse reaction during Remicade Infusion

    Unfortunately, My kid will not do EEN. To top it off, she came down with a cold this morning. Still waiting for a plan… clock is ticking .
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    Adverse reaction during Remicade Infusion

    Thanks for the heads up. Obviously, this has been a stressful week and trying to beat the clock by coming up with a plan with her doctor out of the country. I’ve been in contact with our consulting doctor out of state and awaiting his suggestions. I’ll let you know what is decided.
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