• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Racoon2000

  1. R

    Burning pain-advice and help please

    Hello. Looking for help and advice please. For last few months I've been having really bad urgency to pee. At first I put it down to increased fluid intake and the theory that 'what goes in must come out'. (I'm female!) However over the past month it's got a lot worse. Genital area is now...
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    Struggling to move forward

    Hello. Had NG tube feeding for the last 9 weeks. Was trying to use LOFFLEX with the support of my Dietitian. Things started out okay from 'safe' list but then developed 2 chest infections and things went a bit off course. Started to introduce things from the next phase after but no matter what I...
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    Help, I'm fearful of the NG tube

    Hello I'm heading in to hospital in a few days for my first NG tube feeding. Having it for a month to see how it goes, and it's being reviewed after that to see if I need it longer or not. I am feeling really scared now. This will be my 6th hospital admission for Crohns this year. Staying in...
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    Stressed out with fistulas

    Hello. Had 2 fistulotomies recently - 1 two months ago and the other one 4 days ago. No setons, he laid them both open. First was higher than the second and cut through a bit of the muscle which is causing me a bit of a problem. Anyway......my CRS wrote to my GI after the first surgery to...
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    Could my fistula be returning? please help.

    Hello everyone. Sorry I haven't been about to support others - been a bit of a bad time. We all know what that's like huh? Anyway, I had surgery to lay open a peri-anal fistula nearly 4 weeks ago now. surgeon seemed happy with what he'd done and told me he'd review me in 6 weeks time. I've...
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    Pneumonia, Pleurisy and TB in Crohn's disease

    Hello there. just putting this out there to see if anyone else has experience of this. Been having a pretty rotten time of it. On infliximab since Feb '13 and last infusion was Nov '13 for my CD. Was also on 75mg of 6MP but doc took me off that beg of Dec '13 to see if it was causing my physical...
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    Please help, feel like I'm going mad

    Hi everyone. I was diagnosed with moderate-severe extensive Crohn's in Jan 2013 by colonoscopy and biopsy after 2 years of symptoms my GP put down to physical manifestations of post-natal depression. After diagnosis I pushed for Infliximab instead of steroids as psychologically I didn't feel...
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    Worried about Fistula or Abscess

    Hi Never posted on this site before but worrying so much at the moment, looking for a bit of advice. I have Crohn's. Currently on Infliximab infusions every 8 weeks and also on Mercaptopurine. About a month ago, i noticed a lump about an inch or two away from my anus, on my left buttock cheek...
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