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Recent content by rhall

  1. R

    Please help - 4 yr old has fissures

    Hi! His fistula did heal, but he still has an issue with fissures. He has been on Remicade since April yet he is still getting very large fissures. His docor has decided to move his injections from five weeks to four weeks. She explained that sometimes in children with perianal disease she...
  2. R

    Please help - 4 yr old has fissures

    Hi ladies! I've been thinking about each of you and how kind you were to help me at the beginning of my son's diagnosis. I just wanted to check in and see how each of your children were doing. Please know I'm still thankful for all your reponses and thinking about all the feedback I recieved...
  3. R

    Please help - 4 yr old has fissures

    Thanks for the quick response. The Miralax really helped him go, and I do believe (hope) that was the issue. He didn't complain of pain today. The doctor mentioned receiving iron through IV doesn't cause constipation the reason why she prefers this method. Thanks again!
  4. R

    Please help - 4 yr old has fissures

    The infusion went well yesterday, but my son has been complaining of stomach pains today. I'm not sure if I mentioned he also had an iron infusion. I read that iron can make you be constipated and to give Miralax if needed. With that being said he normally goes everyday and hasn't went. I'm...
  5. R

    Please help - 4 yr old has fissures

    Thank you! I appreciate the response! This was helpful to know!
  6. R

    Please help - 4 yr old has fissures

    Good afternoon ladies. My mother has Arthritis and also receives medication through infusion. She was surprised to hear that the doctor didn't give me any medication prep for tomorrow. She normally takes Benadryl or Tylenol/Motrin. Do you all have any feedback about this? Should I do...
  7. R

    Please help - 4 yr old has fissures

    Thank you! This was all very helpful to know. I appreciate your feedback.
  8. R

    Please help - 4 yr old has fissures

    Our children's hospital is now requiring all staff to wear masks. We will have ours on. I'm sending you well wishes and strength for your treatment next week!
  9. R

    Please help - 4 yr old has fissures

    Thank you very much!
  10. R

    Please help - 4 yr old has fissures

    I'm just now seeing your comment. I'm sorry for the late response. My son never had an issue with constipation. He didn't go because of the pain from his fissures. I did use suppositories but my son hated them so much. He always said they hurt, and I would do it while he was sleeping. The...
  11. R

    Please help - 4 yr old has fissures

    Thank you very much for your feedback. At this time my son is not on any medication. He has only been on antibiotics. I'm not sure if there was a miss understanding, but I've always been ok with my son taking medication. I just wanted to wait a few weeks to see how things were going to go...
  12. R

    Please help - 4 yr old has fissures

    ok, thank you for letting me know. i will ask her about the formula. i really appreciate your feedback.
  13. R

    Please help - 4 yr old has fissures

    Thanks for bringing up so many good points. No, we haven't started Remicade. We were waiting on the insurance approval. He was never given steriods only antibiotics that he is no longer taking since things have improved for him. My husband still has to work outside of our home and is in...
  14. R

    Please help - 4 yr old has fissures

    Please excuse my very late response!!!!! The board notification I receive for new messages went to my junk mail. Thank you so very much for checking on my little guy. Life these past few weeks has been so crazy. I know we all feel it and are in this together. My son is doing better. We...
  15. R

    Hi! Thank you so much for your feedback! I took a little time to read about Dr. Grovit and read...

    Hi! Thank you so much for your feedback! I took a little time to read about Dr. Grovit and read several of his reviews. Can you tell me more about his diet plan? We have started SCD, how is it different? I would appreciate any feedback you can provide. I'm also being told that a fistula can...
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