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Recent content by Rob

  1. R

    Back for another look

    Dunno if anyone noticed, or gave a poop but havnt been on for a while well lucky for all you I'm back - insert sarchasm here don't worry I won't be on much so yea feel free to ignore me an my rants as ya feel fit
  2. R

    Why do I bother

    Ok let's see my cd ATM is goin well, not in remission or back to a normal life, but I do hav some good days but that's jus it why do I bother gettin better? I've lost most my friends since I've had this flare havnt seen most in almost 2yrs I don't hear from anyone either, I mean not hard to...
  3. R

    Awwwww man!!!

    Bugga bugga bugga sh#t!!!! I thought things had been goin fairly well with my cd apart from knee cartlidge issues I've been pretty good lately but in last 10mins I've had to rush for the loo and possibly tmi - but what can I say, but blood blood blood lots n lots of it an I've now got pains...
  4. R

    Crohns and bone cartlidge

    Has anyone else had any issues/problems with cartlidge problems in their joints I've been having major knee pains so I was sent to hav some scans/xrays on it they found bone effussion and possible bone cartlidge damage my dr is hoping it may settle down in a few weeks by keeping off it ummm...
  5. R

    Small update

    Hi guys an gals I've been pretty quiet on here lately due to a bloody head cold that just won't go away havnt had a cough yet, touchwood but I keep getting a sinus problem an blocked nose :( I havnt had any asthma probs for years but since this head cold I hav probs breathing just as I think...
  6. R

    Hit by a bus

    I awoke this morning feeling like absolute crap puffy eyes, blocked runny nose..... Great I got a friggan cold reaching for my cold/flu tablets I had to stop. Now I'm waiting for a phone call to see if I'm allowed to take these on my drug trial I jus wanna die! Yuck! Hate bein sick, so much...
  7. R

    Had enough :(

    That's it I've had enough! Bus driver stop I want off this crappy ride. I've been doin pretty well on this new trial not huge improvements but small ones so it's been slow but seemed to be working but last few days I'm startin head backwards hopin it's jus a hicup in the road to recovery an...
  8. R

    Move that fat butt!

    Ok so I've been off work now almost a year now with my current flare ..... Really? A year s@#t can't believe I've been a couch potato that long :( thats a year on 50-30 mg of pred and a couple bouts in hospital on hydrocortisone (4x100mg) finally dared myself look in the mirror other day and...
  9. R

    Uncontrollable bowel movements in the middle of the night

    Hi guys havnt been around much lately as I been tryin to drag myself out of a hole of depresion sittin at home all day/night is startin to take it's toll I guess as alot if you know i'm on a drug trial which seems to be helping quite a bit, but I still hav alot of cd symptoms n problems the...
  10. R

    Chilli's

    Ok so I was talking to my trial nurse the other day an the subject of chillis came up she was saying that a patient she had once before had read somewhere about chillis and crohns, and some benifets apparently this patient noticed some improvement after eating the chillis it apparently had the...
  11. R

    Ok so what gives?????..............

    Ok so I'm in the middle of one my worst ever flare ups - and nothing it seems has been able to fix/slow things up except for hydrocortisone iv treatment I had in hospital so I was put forwrd too go on a new drug trial - vedolizumab MLN0002 I went for a heap of tests etc and passed/failed...
  12. R

    Predniscone and sugar levels

    Just a question upon being discharged my nurse took my blood sugar level now she said that predniscone can cause blood sugar levels too rise upon checking mine it was low? 4.9 I'd jus finished lunch about half hour b4 she then checked my notes for my levels prior an found they were all in high...
  13. R

    How do you cope with flare ups??

    When having a bad flare up of crohns how do you make things more bareable? Apart from just food etc as I know that's a big factor I've found sometimes in middle of the night when it's just too much a hot/warm shower sometimes helps I've also found the ol wheat bag on the belly while watchin tv...
  14. R

    Shares in toilet paper companies

    I feel as tho I almost bought a toilet paper company since I was diagnosed I prob could hav with the amount I spend on it an go thru lol it's weird tho never thought I'd hav tried almost every brand made lookin for THE right one lol like choosing the paint for ya house walls grabbin sample...
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