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Recent content by rorho19

  1. R

    Surgery does not always go as planned

    sometimes it goes better. I am 58 year old male first started having symptoms aged 54. Started with urinary urgency and strong stomache pains..so bad I had three days and nights with no sleep and had to be sedated. Took 6 months to get a diagnosis of Crohn's. Put up with bouts of pain and...
  2. R

    Small intestine resection - glad you did it?

    I'm newbie facing first surgery for two strictures suffered 4 yesrs of constipation etc am in inflammatory remission on AZATHIOPRINE but need surgery for pain of food going through strictures ....let me know if you had this done and were really glad you did...
  3. R

    Better sleep after surgery

    I have been waking at 4 or 5 am since my first symptoms 4 years ago and never get back to sleep- just lie there feeling exhausted, trying to rest and not disturb my partner. Anyone had experienced significantly improved sleep after surgery? I assume bowel starts doing stuff a couple of hours...
  4. R

    How do you face a first surgery?

    How do you cope with the anxiety, the uncertainty of outcome and the fear of pain.
  5. R

    Strictures and osmotics

    Hi, something of a newbie here would appreciate comments from anyone with similar experiences/symptoms. I was diagnosed with 2 small intestine strictures 4 years ago and have been on Azathioprine and Movicol ever since. Have been in inflammatory remission for about a year but still...
  6. R

    remission rates

    Does anyone know the statistics on remmision rates if you are already in remission pre surgery? ie I have had no inflammation for a year but need surgery due to pain and constipation from fibrotic strictures. presumably this gives me a better chance of long term remission compared to surgery...
  7. R

    New pain: is it strictures?

    Was diagnosed with 2 strictures in illium 4 years ago - been managing on azathioprine and movicol ( stool softner) which finally got me into remission a year ago. Feacal calproctin only 111 and nothing in the bloods. 5 months ago went back to a desk job after a year and immedeatly began to...
  8. R

    Waiting to see surgeon

    I am waiting for my referral to surgeon for possible resection of 2 fibrotic strictures in illium- due to pain despite being inflamtion free for over a year. In the mean time I am on Azathioprine ( which seems to be working) and Movicol to help ease the constipation - which I guess is due to...
  9. R

    New member facing surgery

    I am a 57 year old UK male that was diagnosed about for years ago. I have had 2 strictures in the small intestine all this time and suffered regular abdominal pain in both the left and right and also periods of significant bowel and bladder urgency. I assume the latter is due to compacted...
  10. R

    Strictures constipation and urgency

    Hi Folks I am a 57 year old UK based male diagnosed with Crohn's 4 years ago at which point two strictures in illium were confirmed. A course of Pred brought things under control and pain was occasional after eving meal but fine durin the day. Having had a year of office work refurbing a house...
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