• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by Rose09

  1. Rose09

    Coronavirus/Covid-19

    Thanks for posting! very helpful site!
  2. Rose09

    Flare? CMV?

    hello all, I have Crohn's Colitis, diagnosed 2012 on Lialda and Humira. Last flare was january 2019 - very bad flare and started Humira in April 2019....No flares since and been quite well. Started with the dreaded pain and D 12 days ago and have seen every kind of stool since (sorry TMI) total...
  3. Rose09

    Coronavirus/Covid-19

    https://www.crohnscolitisfoundation.org/coronavirus/what-ibd-patients-should-know The video is very informative and reassuring, especially from 42:00 where the Dr talks about the world wide registry of IBD patients with Covid-19. I really recommend watching this!
  4. Rose09

    Coronavirus/Covid-19

    Are you in hospital right now ? I'm so sorry that you have this added stress on top of your health worries...can you put off the biologic med for a bit until this virus calms down ? Are your symptoms bad at the moment ? I have not heard of many people with esophageal Crohn's, I imagine it is...
  5. Rose09

    Coronavirus/Covid-19

    I don't think you need to worry too much if you are not on any immunosuppressive meds and are relatively healthy. I guess we just wait and see how it developes and keep clean and away from risky crowds. I still dont know what to do about my trip...the news switches from panic and stay home to "...
  6. Rose09

    Coronavirus/Covid-19

    I am supposed to fly to London to visit my father next week. He is frail and on oxygen at home for lung disease...vulnerable to infection. I really don't know what to do. I don't want to potentially pick up the virus on the plane or at the airports and inadvertently give it to him (plus I am on...
  7. Rose09

    Coronavirus/Covid-19

    I agree I would rather have a flare than my lungs be in bad shape although I usually need pred when flaring and that would make me even more susceptible to viruses.
  8. Rose09

    Coronavirus/Covid-19

    It is a worry isn't it? I haven't even bothered contacting my GI or Abbvie...I know they will say carry on with Humira whilst well. Its a waiting game I suppose. I hope it gets under control soon! Brandonz thank you for updating us with your GIs advice. Good luck everyone!
  9. Rose09

    Coronavirus/Covid-19

    Hello fellow Crohnies, Anyone here concerned about our risks while on Humira to fight of the new Coronavirus ? I am worried and trying to not panic. I am supposed to be taking a transatlantic flight in 2 weeks, not to a restricted country but the travel and airports etc worry me...
  10. Rose09

    First Humira doses today!

    The injections are going ok. The last one was the best so far in that i had minimal local reaction. I think the trick is to count to 15 rather than just 10...that seems to cause less inflammation and reaction for me. I am due tomorrow so i will try that again and see how it goes. I have some...
  11. Rose09

    First Humira doses today!

    I'm waiting for the Humira Nurse Ambassador to arrive. My bowel is working overtime with anxiety....ugh. Just want this day over with. Wish me luck!
  12. Rose09

    Vaccinations before starting Humira

    I had the Pnuemovax last week and am trying to get the Shingrix this week before starting Humira . I have to check with my insurance because it is a pricey one...also there is a shortage so I have to look around. Did anyone here have to get the Shingrix vaccine ? it is not the live one and is...
  13. Rose09

    Timing of my 1st Humira loading dose...

    Hello everyone, newbie to the forum ! I have finally agreed to Humira for Crohn's Colitis....currently on Lialda. This is my first biologic. What would your advice be re: the days following the first few shots ? Days off work if i can ? (I am a nurse in urgent care so lots of infection...
Top