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Recent content by SammyD

  1. S

    Finding this disease hard to control

    I have crohns in the TI, it is not extensive but it is proving to be very very difficult to control. I am on aza and humira and just landed in hospital for a few days with a flare on IV steroids. I had what the GI was calling a mild flare so we went to weekly humira and he upped the aza dose...
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    Resection?

    After a recent MRI and 17 months of flaring my doc has mentioned that we might need to head down the surgery route, and it's up to me whether we do or not at the moment. I have a 6cm stricture from scar tissue and all meds so far have not worked. He has put me on humira on top of aza to see if...
  3. S

    Over it :(

    I've been flaring since my baby was born 15 months ago. I've gone from pentasa to aza and am now needing to start humira in a few weeks. A have a stricture and the doc is mentioning surgery but we are starting off on humira to see how it goes first. I'm starting a new job in January and I'm...
  4. S

    What is remission? Does it even exist?

    Just wondering what people say is remission? Are you symptomless or pain free during the good times? I was diagnosed almost 2 years ago. The only time I have felt properly well was the last half of pregnancy, where I was actually pain free and symptomless for the first time in my life. It was...
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    Opinions please for Aza for Treatment? Also Still Breastfeeding.

    Hi everyone, haven't been around for a while but things aren't going so well so I'm back. I became pregnant a few months after I was diagnosed and was in clinical remission and my pregnancy went really well - was just on Pentasa and in the last half on my pregnancy I was pain free for probably...
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    Conceiving with Crohns anyone to join me?

    So, I have had the all clear from the GI and GP, and are now actively TTC :ybiggrin: yay! I am so excited, 2013 was a terrible year for us and with the Crohn's diagnosis a few moths ago as well, it just seemed to get worse. I went into remission (took about 2.5 months), but the last few weeks...
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    How do you manage? Honestly?

    Hello again, Just need to vent away. Was diagnosed with crohns 8 weeks ago. Did a round of pred and found the side effects extremely difficult. Coming off the pred was also difficult, I had what seemed to be a minor flare in the first week off. A follow up calprotectin test a couple of weeks...
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    What is happening? Please help

    Last week I had eye pain, and was sensitive to light (bright lights hurt my eyes). Then it went away. Yesterday, my eyes were killing me. The pain goes up into my forehead and it gave me a headache. Bright lights also hurt my eyes again and when I looked at my pupils they seem to be confused...
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    Crohn's reflaring?

    Hi everyone, I am fairly new around here and new to Crohn's so just after some advice. I have been on pred for 7 weeks tapering every week, I am currently down to 5mg an am due to stop taking it in a few days. Since my last taper on Sunday from 10mg to 5mg I have been seeing spots of blood...
  10. S

    Newly diagnosed and feeling down

    Hi everyone, I have been reading the forum for a while but just joined up. I have been recently diagnosed with Crohn's of the TI and I am feeling a bit lost/depressed about it all. I have excellent GI/IBD nurse support but I just don't know how to feel about it all. I am struggling to come to...
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