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Recent content by SarahAnne

  1. SarahAnne

    Getting a MediPort & kind of freaked out, any help?

    I am getting a Mediport put in on Tuesday, 2/5. I've seen them before on patients in the infusion lab, usually for chemotherapy. Has anyone had one before? All I know is that I have to have a driver, so I guess I'm going to be put under or in a twilight (which is the same thing for me...
  2. SarahAnne

    Off Remicade 5 months, now it's just sitting in the frig :(

    My last dose of Remicade was in August 2012. It's been a mess of switching doctors, but I thought I was finally done. My GI was working with a home health agency to have a nurse come out to do my infusions at home. I was approved for the Remistart program and the nurse came out yesterday with...
  3. SarahAnne

    The Day I Feared Would Come

    I was diagnosed with Crohn's at 19, so by the time I had kids it was certainly a fear that they would have it too. My son (9 years) has had abdominal pain and bathroom issues off and on for years. It just recently went from 2-3 times a month to 2-3 times a week. I made an appt. with his...
  4. SarahAnne

    Latest Blood Work!!

    I had upper and lower scopes in April, pain I thought was the Crohn's but turns out I had gastritis. My scopes showed no active Crohn's, I almost hesitate to use the word *remission* since it has been so long, however..... I had bloodwork done on May 29 and got my results. I could not be more...
  5. SarahAnne

    Remission at Last!!

    I just got released from the ER yesterday, I thought I had a partial obstruction based on my pain, but it turns out it was gastritis. I also have a couple of kidney stones that aren't doing much, but could benefit from being shocked. I had a ureter resection a couple of years ago, and I don't...
  6. SarahAnne

    I hate going to the ER!!

    I absolutely hate taking myself to the ER. I understand sometimes that there is no other option, I just always feel like I'm being judged when I walk in there. I can just imagine all the other people sitting in the waiting area looking at me and thinking, "What's wrong with her? She walked...
  7. SarahAnne

    Doctor prescribed Cholestyram

    So the Cipro & Flagyl did nothing for my chronic diarrhea. The Xifaxin seems to be doing even less. My GI called in Cholestyram, and wants me to take this for 2 months. I have an appointment the end of May to assess my situation. From what I've read, it is similar to Questran, it binds bile...
  8. SarahAnne

    Diarrhea when I feel nauseated?

    I've been having a real struggle lately, just got over "suspected SIBO" and now I'm starting to have symptoms again. I wake up, usually early, with terrible D. I feel better after I've cleaned out, it's like doing a scope prep nearly every morning. Then I start to get horrible hunger pains. I...
  9. SarahAnne

    Good juicer recipes needed!

    My husband bought me a juicer!! I should get it tomorrow, I'm going to go buy some fruits and veggies tonight! Anyone have any good recipes? I tend to have a bit of a sweet tooth, but I need to drastically change my diet. I am finishing my antibiotics today for SIBO, and from everything I've...
  10. SarahAnne

    Can a girl catch a break already?

    Before I even start, I guess I should state that I am VERY thankful for the improvements I've had since the summer. My stricture was so bad that everything, eventually including liquids, came back up. Since my surgery, I can eat without extreme pain or vomiting. Mostly. I had an appointment...
  11. SarahAnne

    Don't want to go to the doctor...

    Have a GI appointment tomorrow at 9:00am, which means I have to leave at 3:00am! My husband is driving me, we just couldn't afford for me to travel up a day early and stay overnight. The drive or lack of sleep isn't bothering me, I'm just not ready for any more crap right now. It seems like...
  12. SarahAnne

    Possible hernia?

    I've been having some abdominal soreness that I was attributing to too much heavy lifting after surgery. I noticed in the mirror this evening that I had a very noticeable bulge where I'm having the pain. I'm pretty sure I've got a hernia and I'm freaking out about it. I can barely move, it's...
  13. SarahAnne

    My infusion lab is closing!!

    I had my Remicade this morning, hooray as I was really starting to feel, not terrible, but not so well. That's mostly my own fault, I was due for it on the 10th but both of my kids had been sick and I wasn't feeling so hot. I decided it wouldn't be the best idea to get it at that time. The...
  14. SarahAnne

    Just feeling sorry for myself

    I am freaked out by the copious amounts of mucus in my stool. It looks less like a BM and more like someone with a severe cold blew their nose into the toilet. No blood that I can see, but everything coming out has been an orangey-rust color anyway. I am so tired and worn out. The holidays...
  15. SarahAnne

    Nauseated and vomiting in the morning

    I'm starting to worry myself a little, I've got some new symptoms and not sure where they're coming from. For about a week now - not every morning, but most - I've been really nauseated as soon as I wake up. It seems to be worse on school days, I get up early to get the kids up and ready for...
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