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Recent content by sashaz

  1. S

    Autism spectrum disorders and the gastrointestinal tract: insights into mechanisms and clinical relevance

    I believe my son may have ASD and seeing him grow up he has a huge amout of anxiety and stress. Being different in some way and not fitting in, being bullied and having touble making friends has meant he has had more stress than a standard child. There was some evidence of stress being a factor...
  2. S

    Broccoli sprouts diet protects mice from Crohn's disease, study shows

    https://www.news-medical.net/news/20231109/Broccoli-sprouts-diet-protects-mice-from-Crohns-disease-study-shows.aspx High fiber diets, like those that include broccoli sprouts or other cruciferous vegetables, may reduce disease symptoms and improve quality of life in patients with inflammatory...
  3. S

    First JAK Inhibitor Approved by FDA for Treatment of Crohn's

    Im newly on Rinvoq, should I ask to change it?
  4. S

    Any experience with Rinvoq

    I have taken it for the last 2 weeks on the starting dose. I have a bad muscle ache. I went to the gym last week and my arms still hurt, and it usually takes 1 day to recover. I also feel slight discomfort in my chest. I am going to email my healthcare representative to mention these to her.
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    Professional tennis player ranked 84 in the world with Crohn's. How Muller Has Overcome Crohn's Disease To Face Djokovic At US Open

    I play a lot of tennis and I follow it closely. I have seen today that Alexandre Muller ranked 84th (from France) has Crohn's. I am a massive fan now I know what he goes through to be able to play. The article link Muller is far more than that, though. The 26-year-old is enjoying the best...
  6. S

    Crohns and joint pain?

    I have Chrohns and have been playing tennis 3 times a week for the past 4 years. My knees and ankles are very sore in the mornings and late at night. I have read through the advice here and am going to take more vitamin C, folic acid and curcumin. Hopefully, this might be helpful, however, I am...
  7. S

    My Cure for Crohns

    I have had Crohn's for 35 years since I was 15. I thought they would have found a cure by now. It makes me sad that they still haven't and probably won't do it in my lifetime.
  8. S

    Very slight discomfort in strange location

    I have slight discomfort in a place I cannot quite describe. The pain level is about 1.5 but I am not sure if I should be worried or not. The pain is kind of on the other side of my sphincter. It's sort of on the inside of my large bowel where it meets the exit I guess. As it is in a strange...
  9. S

    Awful smell around buttocks but no fistulas

    Hi. I can sympathise. I do not have that problem but I did use to get abscess around there. It helped to use an antibacterial soap every day. Try that and it could get rid of some bacteria that might cause smells maybe. best of luck.
  10. S

    Help me make an app for IBD

    Hi I am a Crohn's sufferer (diagnosed about 27 years ago). Lately I have gotten into app development and want to make an app. I have seen quite a few apps that cater for IBD in some form BUT they are all so hideously ugly. Why should being ill mean we have to use ugly apps. I want to make an app...
  11. S

    Dynamo on Parkinson interview

    Dynamo is a English magician and he was interviewed on the Parkinson masterclass program. He talks about his crohns and how he had it from when he was 15. I'm a real fan both cos of his skill and that he is a fellow crohns sufferer. http://www.sky.com/tv/show/parkinson/video/dynamo
  12. S

    Foods you cannot resist and loose control?

    I cannot stop myself eating pop crisps. They taste so good and are kinda low fat. They are like a drug. Anybody have anything they loose self control with?
  13. S

    Stool test?

    Been thinking about getting my stool tested for the bacterial flora analysis. Anyone done this in the uk and any advice on where to get it or if it's any use?
  14. S

    Blood on toilet paper.

    So I'm now on prednisone after months of very bad watery bm. My BM is now very good and solid. However with the sudden hardening of the BM I had some discomfort when going to the bathroom. Now I noticed some blood on the toilet paper. There is a very tiny little red fresh blood in the bowl...
  15. S

    Advice - Abdominal Soreness and BMs

    Hi, I am on Humira (for about 2 years) and Creon (for my pancreatis) and have had a great 6 months of feeling the best I have for years. I gained weight and also was able to eat so much more than I had done for years. About 3 weeks ago I started to get a few bad BM then I have had some soreness...
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