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Recent content by scrapper1264

  1. scrapper1264

    How do you respond - I WISH I WERE NORMAL!

    Of course the first thing that pops out of my mouth is well, you are normal to me. Well, that didn't help at all! He said Mom, I am not normal! Then I thought I should say well, God makes us all different. But I don't want him to be mad at God! He is very compliant with all his meds but...
  2. scrapper1264

    Humira being denied after a year

    DS9 has been on Humira for a year now and is doing so well. Today we receive a call that it is being denied by the insurance company. Pharmacy said the plan was "restructured" and people younger than 15 are not eligible. We have started an appeal process today through the insurance company...
  3. scrapper1264

    Humira Injection Leakage

    I just gave my son his biweekly injection and half of it leaked out. Apparently I did not have enough pressure on his leg. Should I still wait 2 weeks before giving him another injection? Or wait and see if he has any symptoms? I am so frustrated right now!!!
  4. scrapper1264

    For those kids on Humira

    Did you have problems with the insurance company? Our insurance has already rejected Cimzia (went through appeal process), and it has just rejected Humira so we are in the appeal process again. Thanks for any info!!
  5. scrapper1264

    Methotrexate Only?

    Posted this originally on Parents with Kids with IBD group: Has anyone else's child been on methotrexate only? While we are waiting for approval on the cimzia, my son's dr wants to put him on this to tide him over since he is not on anything for his CD. His main painful symptom is his skin tag...
  6. scrapper1264

    Methotrexate Only?

    Has anyone else's child been on methotrexate only? While we are waiting for approval on the cimzia, my son's dr wants to put him on this to tide him over since he is not on anything for his CD. His main painful symptom is his skin tag right now. We think the change in his diet (organic...
  7. scrapper1264

    Newbie Here!

    Hello everyone! My 8 yo son was diagnosed with Crohn's back in the fall of last year. It took a couple of months to get it diagnosed since he also has Cystic Fibrosis. The doctors were focusing his CF, and not even thinking of Crohn's. He immediately started prednisone and remicade...
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